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The Chronically Courageous with Bonni Howard

Two Zebras Get Personal about Living with EDS

Season 3, Ep. 52

This week Bonni returns to the mic after a long hiatus and much self-reflection.  In honor of May being EDS Awareness Month, she sits down with Samantha Brechner to talk about the raw and real ways that having Ehlers-Danlos Syndrome has affected each of their lives.  


You’ll hear the following and more: 


  • How having EDS has changed our lives
  • The long journey to diagnosis
  • Things that help us improve our quality of life
  • What we wish more people understood about EDS 
  • Our stages of denial and trying everything to cure ourselves
  • The most challenging symptoms 
  • Dealing with the darkness of our most challenging times
  • The importance of community 


#EhlersDanlosAwareness #MedicalPTSD #Gaslighting #Dysautonomia #MastCellActivationDisorder #SmallFiberPeripheralNeuropathy #InvisibleIllness #Disability #YouDontLookSick #EhlersDanlosSyndrome #ADHD #Dyspraxia #Subluxations #LongCovid #Anxiety #Depression #ToxicPositivity #ChronicIllness #ChronicPain 



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