The Chronically Courageous with Bonni Howard

Share

Lara Bloom, President & CEO of The Ehlers-Danlos Society | From Challenge Comes Opportunity

Season 2, Ep. 23

This week I had the honor of speaking with Lara Bloom, President and CEO of The Ehlers-Danlos Society. This year she was also appointed Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine.  Lara is an expert in patient engagement and advocacy for rare, chronic, and invisible conditions as well as an international public speaker and campaigner. 


Lara is all of the aforementioned things, but also a patient who lives with Ehlers-Danlos Syndrome, dysautonomia, and other comorbid conditions.  Lara’s story is both inspiring and impressive, as she has managed to accomplish so much despite her health challenges.  



Some things that you’ll learn:

  • About Lara (1:20)
  • Recent challenges that Lara has faced separating her personal vs professional life (9:30)
  • Lara’s personal experience with Covid-19 (11:04)
  • About the Breaking Down Barriers initiative (19:08) 
  • One of the hardest things that Lara deals with as a public figure. (36:02)


Some questions Bonni asks Lara:

  • How do you manage all that you do? (6:08)
  • What led to your diagnosis? (23:20)
  • What would you tell people who are in the beginning of their process and don’t have a firm diagnosis? (26:26)
  • Why Lara rarely sees doctors these days (29:14)
  • What drove you to do a marathon and how did you have the stamina to complete it? (31:43)
  • Looking back at your journey would you change anything? (34:50)
  • What is next for you and the Society? (41:50) 
  • What would your My Intent bracelet say? (44:35)
  • What’s lighting you up right now? (47:11)
  • What advice can you give other people on how to best advocate for themselves? (48:25)
  • What does courage mean to you? (50:17)


Connect with Lara:




Show Resources: 




Connect with Bonni:

https://www.instagram.com/thechronicallycourageous/

https://www.facebook.com/bonni.howard

bonni@thechronicallycourageous.com 



More Episodes

1/19/2021

How to Feed Your Mind & Body, Not Your Fear with Natali Križan

Season 2, Ep. 36
Natali Križan was diagnosed with Crohn's Disease as a young girl. She went through years of disabling pain, eventually leading to surgical removal of two meters of her colon. Despite the challenges of her diagnosis, Natali immersed herself in self development. She went on to become an expert on mindset through years of training under Tony Robbins. Natali is now a certified fitness and personal trainer with ten certifications and 20 years of experience in the fitness industry.Today, Natali helps people to identity and work on limiting beliefs and patterns that are keeping them stuck. She believes that when you are in shape mentally, physically, and emotionally you have the focus, strength, and resources to accomplish anything!Listen to hear how Natali overcame her diagnosis, learning to nourish her mind and body and claim the greatest measure of wealth, HER HEALTH.Some things that you’ll learn:About Natali (1:11)How did chronic illness change your perspective in life? (7:12)The relationship between inner peace and health (11:01)About the journey method (17:57)The daily routine that keeps Natali healthy physically and mentally (24:06)Some questions Boanni asks Natali:About Natali’s journey with chronic illness (3:01)How do you tune into your body? (8:55)What would you say to people who are in a dark place to start getting out of that space? (16:05)Do you have any clients that you’ve helped through their chronic illness? (19:27)How do you teach people to love their bodies again? (21:21)What is your “why”? (22:15)Where can people get started with incorporating movement into their lives? (26:04)What have been some your biggest takeaways from Tony Robbins? (27:56)What do you do to change your state? (30:05)How do you define courage? (36:12)Connect with Natali:IG: https://www.instagram.com/krizannatali/Facebook:https://www.facebook.com/KRIZANNATALI/Show Resources:The Journey Method: https://www.amazon.com/Living-Journey-Using-Method-Yourself-ebook/dp/B005PSL1VEConnect with Bonni:https://www.instagram.com/thechronicallycourageous/https://www.facebook.com/bonni.howardbonni@thechronicallycourageous.com
1/12/2021

Proof that Incurable Only Means Curable from Within with JOY

Season 2, Ep. 35
This episode is captivating, mesmerizing, and filled with hope for anyone who has been told what they can’t do.As just fifteen years old, Joy flew off a cliff on a motorbike and was declared dead on an operating table. Nine later she was hit by a drunk driver and suffered both internal and external injuries. She was told by doctors that her leg needed to be amputated and that she wouldn’t live past 30 years of age.At the time of recording this conversation on December 28th, 2020, Joy was twice the age she was told she’d live to, 60 years old. And by the way, not only did she keep her leg, but she became a medal winning ballroom and Latin dancer.Joy lives by the words “incurable only means curable from within” and claims that her perspective is her superpower. She is a published author certified in over a dozen healing modalities. Joy now teaches others to “reprogram their brains for optimal levels of productivity and JOY”. In addition she teaches how to clear stress in three minutes or less, dissolve emotional trauma painlessly, and experience JOY regardless of circumstances.Some things that you’ll learn:About Joy (1:07)How she became a world expert in clearing stress (6:47)The most important thing Joy learned (12:05)What we are taught about pain (14:53)Some questions Boanni asks Joy:What do our symptoms mean from a larger perspective? (12:44)Why she named herself Joy (20:12)You’ve done a wonderful job of turning a difficult situation around. What inspires you to do that? (22:20)When you look back over your life why do you think all of these things happened? (28:40)Do you think differently because of the brain injuries? (30:45)How in the world can we possibly get rid of our stress in three minutes? (32:03)How do you define courage? (44:17)Connect with Joy:Website: https://experiencejoy.com/Show Resources:Video on How to Clear Stress in 3 Minutes or Less: https://www.youtube.com/watch?v=3NfrG7VQk_I&feature=youtu.beGo Fund Me: https://www.gofundme.com/f/JOYs-Jaw-Miracle?fbclid=IwAR2q_yW63GRCku_xK0V9pJjWnFm1bcN3S2EqtXRGanDmjjpmgsCn0DIisy4You Can Heal Your Life Book: https://www.amazon.com/You-Can-Heal-Your-Life/dp/0937611018Connect with Bonni:https://www.instagram.com/thechronicallycourageous/https://www.facebook.com/bonni.howardbonni@thechronicallycourageous.com
1/5/2021

How He Rewrote His Autoimmune Story with Adam Kruger

Season 2, Ep. 34
Adam Kruger, had a picture perfect life until the age of thirteen, when some personal events threw him into a downward spiral of stress and illness. At the age of fourteen, he found himself in the most excruciating, debilitating pain of his life, leaving him unable to keep food in his body. After a year of searching for answers, he was diagnosed with Duodenal Crohn's Disease.Through various modalities and lifestyle changes, Adam managed to get his symptoms under control and went on to create a very full and satisfying life. Adam has worn many hats including TV host, inspirational speaker, podcaster, and executive coach, but his biggest measure of success is how he is able to make a difference in the lives of others.Adam truly embodies the name of his podcast, Enhanced Living, and in this episode shares so many strategies to help us all live a more enhanced life.Some things that you’ll learn:About Adam (1:11)The autoimmune condition that Adam was diagnosed with (2:30)How Adam started eating vegetables again (6:09)What he discovered worsened his condition and how he used this discovery to manage his symptoms (6:55)How Adam’s daily routine helps him maintain his spiritual, physical, and emotional health (33:17)Offerings that Adam and his wife, Cherice have available (38:10)Adam’s words of advice to anyone going through chronic illness (39:48)Some questions Boanni asks Adam:How do you manage and reduce your stress? (7:40)Do you feel that stress is a root cause? (11:52)How do you define success? (18:21)If you could eliminate having Crohn’s from your life would you? (23:34)What tips can you offer to help people who are still dealing with chronic illness? (26:04)How do you personally define courage? (37:20)Connect with Adam:Website: https://www.theadamkruger.com/Enhanced Living Podcast: https://www.theadamkruger.com/podcast-1Facebook Group: https://www.facebook.com/groups/1472827032897144Instagram: https://www.instagram.com/theadamkruger/Show Resources:The Celestine Prophecy Book: https://www.amazon.com/Celestine-Prophecy-Adventure-James-Redfield/dp/0446671002International Academy of Self Mastery: https://iausm.com/Connect with Bonni:https://www.instagram.com/thechronicallycourageous/https://www.facebook.com/bonni.howardbonni@thechronicallycourageous.com