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My life with dementia | A Dementia UK podcast
When dementia care doesn’t reflect your culture: Elene’s story of mixed dementia
Season 3, Ep. 7
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What happens when dementia care doesn’t reflect your traditions, your food or your culture?
In this episode, Safia – one of Dementia UK’s first dementia specialist Admiral Nurses for Black, African and Caribbean communities – speaks to Elene, whose mum lived with mixed dementia.
They discuss why cultural awareness, though often overlooked, is so important to provide compassionate, person-centred dementia diagnosis and care.
Elene’s dementia story offers insight and reassurance for families who feel unseen or misunderstood in dementia care.
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8. Food, routine and tailored care: how Admiral Nurses can provide culturally appropriate dementia support
16:30||Season 3, Ep. 8After listening to Elene's dementia story, Hilda and Safia share practical advice from their perspectives as dementia specialist Admiral Nurses.In this episode, Hilda and Safia discuss:how cultural beliefs can affect how someone responds to a dementia diagnosisthe guilt family members may experience when there are problems with their loved one’s caremore about Safia’s role as an Admiral Nurse for Black, African and Caribbean communities If you haven't heard Elene’s story yet, we recommend giving it a listen first. You'll find her episode right next to this one in your podcast feed.Support and resources:Book a free appointment in our clinic for Black, African and Caribbean communitiesGet in touch with one of our Admiral Nurses for tailored advice
6. Sharing the emotional weight of grief: how Admiral Nurses can support men through dementia care
15:53||Season 3, Ep. 6Inspired by Tommy and Andrew's conversation in the pub, Hilda and Vic share advice and insight from their perspectives as dementia specialist Admiral Nurses.In this episode, they explore:the benefits of music for people living with dementiastrategies for male carers to share more of their emotional lives with friendshow grief can impact carers long before their loved one has diedIf you haven't heard Tommy and Andrew's episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic
5. Masculinity and dementia: Tommy and Andrew’s story
26:17||Season 3, Ep. 5Tommy and Andrew met in a pub in Liverpool to talk about something many men struggle to discuss openly: dementia.Tommy has young onset Alzheimer's disease and Andrew is a carer for his mum, Ann, who received her vascular dementia diagnosis during Covid.In this episode, they talk about navigating the emotional ups and downs of living with dementia and how expectations around masculinity have affected their experiences.Tommy and Andrew’s dementia story challenges stereotypes and opens up an honest conversation about how men experience dementia, whether they’re living with the condition themselves or caring for someone with a dementia diagnosis.Get in touch with one of our dementia specialist Admiral Nurses for tailored adviceFind out more about Dementia UKGet more information on dealing with grief
4. Coping with aggression and change in dementia: how Admiral Nurses can offer practical and emotional support to carers
15:48||Season 3, Ep. 4Hilda and Vic discuss Jules's dementia story, sharing advice and insight drawing on their clinical experience as dementia specialist Admiral Nurses.In this episode they explore:how to manage if the person you’re caring for becomes angry or aggressivehow to cope when multiple family members are living with dementia at the same timehow to create joyful memories even as someone’s dementia is progressingIf you haven't heard Jules’s episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic
3. Anger, turbulence and joy in dementia: Jules’s story of caring for her family
32:50||Season 3, Ep. 3When Jules's uncle started showing symptoms of dementia, she had no idea that soon she'd be caring for multiple family members, who all received a dementia diagnosis around the same time.In this episode, Jules discusses some of the more challenging symptoms of dementia, such as aggression, and her dedication to keeping her family safe and happy.Jules’s dementia story offers comfort to anyone facing the challenges of dementia, while reminding us that joy is still possible.Our dementia specialist Admiral Nurses can helpFind out more about Dementia UKLearn how to keep safe when you care for someone with dementia
2. Siblings, school and emotional strain: how Admiral Nurses can support young carers for a relative with dementia
16:16||Season 3, Ep. 2Hilda and Vic go deeper into some of the themes from Chloe and Amy's dementia story, explaining what families can do next from their perspectives as dementia specialist Admiral Nurses.They cover:how schools can support young carersthe importance of counselling to help young carers manage the emotional strain of looking after someone with a dementia diagnosishow Admiral Nurses can help families prepare for the future through advance care planning, including lasting power of attorneyIf you haven't heard Chloe and Amy’s episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic
1. Becoming young carers in our teens: Chloe and Amy’s story of young onset dementia
34:07||Season 3, Ep. 1Chloe and Amy were just 12 and 18 when their mum Sarah began showing symptoms of young onset dementia. Becoming young carers for a parent with dementia and coming to terms with their mum’s diagnosis was something they had never imagined.This is a story of a family pulling together under incredibly challenging circumstances, supporting each other to juggle work, school and looking after Mum.Chloe and Amy’s dementia story will resonate with families who are navigating a dementia diagnosis while trying to hold on to everyday life.Get support for young onset dementia Speak to a dementia specialist Admiral Nurse Advice on supporting a child or teenager whose parent has been diagnosed with dementia
Season three of My life with dementia
02:36||Season 3, Ep. 0One in two of us will be affected by dementia in our lifetime, and at Dementia UK, we believe no one should face it alone. That’s why we created this award-winning podcast. Hear first-hand dementia stories from people living with the condition, alongside life-changing advice from our dementia specialist Admiral Nurses. Whether you’re a carer or young carer, living with a dementia diagnosis, worried about symptoms like memory loss or simply want to share your experiences, why not visit our website to find out how we can support you? dementiauk.org/podcast-support ‘My life with dementia’ is hosted by Ted Lasso’s Kola Bokinni. The series is produced by Arlie Adlington. Dementia UK: helping families face dementia.