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6. CHC: Well met needs, two PALS complaints and the Ombudsman....
27:14||Season 3, Ep. 6Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022)
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5. One of the Good Guys
46:16||Season 3, Ep. 5Our much anticipated episode featuring Luke Clements, Cerebra Professor of Law at Leeds University. Hugely knowledgeable, a member of the Challenging Behaviour Foundation's Legal Panel and champion for family carers everywhere. We discuss the law; how it should work, how it sometimes doesn't work and how it changes as your young person transitions to adulthood.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022)
4. Nobody has the trump card
29:16||Season 3, Ep. 4Our family carers continue their discussions diving deep into the complexities of navigating the system: deputyship, best interests, annual health checks, and the emotional realities of lifelong caring. If you've been wondering how to ensure your young person's rights are upheld, this episode is for you - jargon free explanations from those who are already living it.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour FoundationDeputyship Deputyship - Challenging Behaviour FoundationHealth Health - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation
3. Hang on, I didn't know about that!
33:08||Season 3, Ep. 3As the title suggests we know that when your young person is going through transition from children to adult services so much is different - plus how do you know what is possible if nobody tells you?!In this episode real families discuss the importance of connecting with others locally and nationally. With some top tips on how to prepare your young person, their siblings and yourself for some potentially huge changes and how to bond with the people who may be caring for your teenager on a day to day basis if they are moving away from home for the first time.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationPlanning Your House Planning your house - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation
2. So it IS possible...
20:27||Season 3, Ep. 2Challenge Accepted Series 3 continues and we are talking about a biggie - housing! In this episode our family carers talk about how they secured a home for their relative and what they want you to know if you are on a similar journey. What's the HOLD scheme? How do you insist on the things you know are important, the non-negotiables? Whether you’re overwhelmed by choices or feel constrained by limited options listen in for real life, real people and real understanding.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationPlanning Your House Planning your house - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation
1. Getting to where you want to be...
20:00||Season 3, Ep. 1Join Challenge Accepted' s third series as we take a look at the transition from children's services to adult services for young people with severe learning disabilities who may display behaviours described as challenging. This episode is a taste of what's to come and we hear from family carers who've been through transition. Where are their relatives now? How did they decide what was best for them? Words of wisdom, witty observations and a whole lot of understanding from those who get it....Episode links Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation
2. Reconnaissance, research and risk assessments
35:19||Season 2, Ep. 2Our family carers are back talking about the summer holidays. This episode acknowledges the challenges of accessing play schemes and respite including how one family carer who became the Chair of her local play scheme to ensure it was accessible to all! There’s also ideas for managing the change in routine, finding spaces to meet others and relaxed theatre performances. So whether you are staying home or getting away, there is something for everybody from others who ‘get it’.Episode linksChallenging Behaviour Foundation website: Homepage for the Challenging Behaviour FoundationCBF Family Carers’ Email Network: Family Carers’ Email Network - Challenging Behaviour FoundationCBF Private Facebook Group: (1) The CBF Family Forum | FacebookPeer Support from The CBF: Peer support - Challenging Behaviour FoundationQuick read guide to Challenging Behaviour: Quick read challenging behaviour guideActivities to do at home: Activities-for-Children-Young-People-or-Adults-with-Severe-Learning-Disabilities-to-do-at-Home-2022.pdf (challengingbehaviour.org.uk)Relaxed theatre performances: Upcoming Relaxed Performances – ATG Tickets - United KingdomRelaxed performance in Kent/Medway: Relaxed performance of Jack and the Beanstalk: December 2024 - Medway Tickets Live