Challenge Accepted

Our third and final episode focused on pica, exploring what it is like living day-to-day with pica and how to balance safety with a good quality of life. The panel answer questions from the CBF’s Family Carer Email Network, so expect real situations and practical suggestions.   Our panel of experts is: Viv Cooper – family carer with lived experience of pica Kate Sanger – family carer with lived experience of pica Linda Hume – Registered Nurse for People with Learning Disabilities Peter Baker – Senior Lecturer, Tizard Centre, University of Kent Resources mentioned in this episodePica and Polydipsia - Challenging Behaviour FoundationExample of zip up the back onesie (not a recommendation) Jumpsuits - Zip Backs — Sensory Smart

The conversation about pica continues... What if your relative HAS eaten something inedible? We talk about how to seek medical help and how to insist on further investigations if you feel you are being fobbed off.Our panel of experts is:Viv Cooper – family carer with lived experience of picaKate Sanger – family carer with lived experience of picaLinda Hume – Registered Nurse for People with Learning DisabilitiesPeter Baker – Senior Lecturer, Tizard Centre, University of KentResources mentioned in this episode:PICA Resource

We will kick off with the basics: what pica means, how to say it and why it can help to name what’s going on. Families often tell us they worry that when their relative transitions from the family home, their concerns about pica won’t be taken seriously or that other people will misunderstand the risks. So the panel talk about how recognising pica can support clearer planning, safer support and conversations with services.Our panel of experts is:Viv Cooper – family carer with lived experience of pica Kate Sanger – family carer with lived experience of pica Linda Hume – Registered Nurse for People with Learning Disabilities Peter Baker – Senior Lecturer, Tizard Centre, University of Kent Resources mentioned in this episode:PICA Resource

We welcome Claire Lightly from Bodysense Education for an open, honest and practical conversation about puberty and sexual expression.We discuss real questions from the CBF Family Carer Email Network and explore some of the issues you might feel least able to talk about.Content note: This episode discusses adult themes such as masturbation in an educational and supportive context.Resources mentioned in this episode:Addressing sexualised behaviours in schools and collegesAddressing Sexualised Behaviour in SEND Schools and Colleges: A DignifBodysense Education - where Claire works!Home - Bodysense EducationDeluxe Condom Training modelDeluxe Condom Training Model, Beige | Health Edco ResourcesEjaculating dildos - this link takes you to an online sex shop Ejaculating Dildos | Ultimate Sensual Experience | Lovehoney UKEasy on the IImage Bank - Learning Disability ServiceLearn and thriveLearn and Thrive | Charity | Educational Resources for Down's SyndromeNSPCC Navigating puberty - lots of free widget symbolsNavigating puberty and sexual development | NSPCC LearningDowns Syndrome AssociationRelationships & Sex Education - Downs Syndrome AssociationSupported Loving ToolkitChoice Support | Supported Loving toolkitThings Tom/Ellie likesThings Tom Likes | Jessica Kingsley Publishers - UKThings Ellie Likes | Jessica Kingsley Publishers - UK

Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022)

Our much anticipated episode featuring Luke Clements, Cerebra Professor of Law at Leeds University. Hugely knowledgeable, a member of the Challenging Behaviour Foundation's Legal Panel and champion for family carers everywhere. We discuss the law; how it should work, how it sometimes doesn't work and how it changes as your young person transitions to adulthood.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022) 

Our family carers continue their discussions diving deep into the complexities of navigating the system: deputyship, best interests, annual health checks, and the emotional realities of lifelong caring. If you've been wondering how to ensure your young person's rights are upheld, this episode is for you - jargon free explanations from those who are already living it.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour FoundationDeputyship Deputyship - Challenging Behaviour FoundationHealth Health - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation

As the title suggests we know that when your young person is going through transition from children to adult services so much is different - plus how do you know what is possible if nobody tells you?!In this episode real families discuss the importance of connecting with others locally and nationally. With some top tips on how to prepare your young person, their siblings and yourself for some potentially huge changes and how to bond with the people who may be caring for your teenager on a day to day basis if they are moving away from home for the first time.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationPlanning Your House Planning your house - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation