Young Tongues

In this episode of the Young Tongues podcast, Barbara talks to Maria Scott, a 47-year-old tongue cancer survivor. Maria shares her journey from being diagnosed with pre-cancerous cells in 2014 to going through stage 4 squamous cell carcinoma of the tongue. She discusses the rigorous treatments she underwent, including a hemiglossectomy, neck dissection, radiation, and chemotherapy. Maria also details the long-term effects of her treatment, such as radiation fibrosis, which severely limits her mobility and quality of life. Despite the challenges, Maria highlights the importance of advocating for oneself and finding joy in life through the support of her family, partner, and dogs. She expresses hope for new treatments and trials that may alleviate the symptoms of radiation fibrosis and improve the lives of cancer survivors.

In this episode of the Young Tongues podcast, Barbara and Jamie open up about recent challenges and personal milestones. Jamie shares the anxiety of discovering a new bump on her tongue and the immense relief when it turned out not to be cancer. Barbara reflects on her ambitious November plans that didn’t unfold as she hoped and bravely discusses her recent diagnosis of lipoedema. Together, they emphasize how important it is to care for every aspect of our health—not just the parts tied to a cancer diagnosis.As the holidays approach, their conversation shifts to the joys and complexities of the season. They share honest reflections on navigating food challenges, social interactions, and finding balance amidst the festivities, offering thoughtful tips and coping strategies to help others facing similar struggles. Throughout, Barbara and Jamie remind listeners of the incredible support and understanding within the Young Tongues community.Before signing off, they take a moment to express their deep gratitude to their listeners and community for the strength and connection they bring, wishing everyone a warm and joyful Christmas filled with love and self-care.

In this episode of the Young Tongues podcast, host Barbara interviews Dr. Melina Wyndon, MD from the University of Kentucky, a specialist in head and neck and microvascular reconstructive surgery. Dr. Wyndon discusses her medical journey, the complexities of tongue cancer surgeries, and her research on HPV-related cancers. She explains the surgical process, including the selection of donor sites for reconstructive flaps, and addresses listener questions. Dr. Wyndon highlights the importance of early diagnosis and the challenges in healthcare delivery while expressing hope for advancements through clinical trials and immunotherapy.

In this week's episode of the Young Tongues Podcast, we sit down with Steven, a beloved community member and actor who has been experiencing recurrent tongue cancer since 1997. Steven opens up about his journey from his initial diagnosis while working at Walt Disney World, to enduring multiple treatments—surgeries, radiation, and chemotherapy—and the emotional rollercoaster that followed. Steven's story highlights the importance of early detection, the critical role of speech therapy, and the struggle to avoid feeling 'othered' due to health and social anxieties. He delves into the power of community support, sharing how friends and supportive networks have helped him through his darkest moments.

In this episode of the Young Tongues podcast, hosts Barbara and Jamie explore the multifaceted experience of 'scanxiety' — the anxiety associated with awaiting medical scan results. They discuss the profound psychological impact and communication challenges surrounding their tongue cancer diagnoses. The conversation incorporates personal anecdotes, revealing how different communication approaches from healthcare providers influence a patient's mental well-being. Additionally, the episode covers coping mechanisms, both involuntary and deliberate, such as physical activities, meditation, and setting public goals. The hosts also highlight the role of support groups, community involvement, and the emotional toll of survivor's guilt. They address the importance of early diagnosis, support during grief, and maintaining personal boundaries within the support community. Moreover, the discussion touches on facing online trolling and the significance of raising awareness about tongue cancer.

In this episode of the Young Tongues podcast, Barbara, along with her co-host Jamie, delves into the mental health struggles faced by young tongue cancer patients. They discuss the significant lack of mental health support in cancer treatment plans and stress the need for mental strength and agility. Personal anecdotes shed light on the long-term trauma, everyday challenges, and the importance of maintaining a balanced mindset. The conversation highlights coping mechanisms such as therapy, meditation, and breathing techniques, as well as the profound impact of peer support groups and virtual meetups. The episode addresses the prevalence of depression, anxiety, and PTSD-like symptoms, while also underscoring the importance of seeking professional help. The role of community support and relatable peers in emotional well-being is emphasised, providing a holistic view on navigating life during and after cancer treatment.