What a Pain

In this pilot episode we will be discussing why we started doing this podcast. We will also have a discussion with Dr Alison Bliss, consultant paediatric anaesthetist at Leeds General Hospital and lead for the paediatric pain management service in Leeds. We had a fascinating discussion about her journey into pain, her service, barbecues on fire, and complex patients. Glyn and Konrad also found themselves flummoxed by the problem of pocket-less trousers!Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Follow Konrad on twitter: @konradjacobsContact: Please email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Jacobs, K., and Williams, G. (Hosts). (2023, May 11). What a Pain. (No.1) [Audio podcast episode]. In Pilot episode: What a Pain.https://feeds.acast.com/public/shows/62f7e5928606e40012ca9129

In this podcast, Glyn and Konrad discuss a book Glyn has been reading about the Sackler family. They are then joined by Dr Jeremy Gauntlett-Gilbert from the Bath Centre for Pain Services to talk about chronic pain and autism. We discussed the relationship between chronic pain and autism, pain management with young people with ASD, what is nice about working with young people with ASD, but also Lapland, how Jeremy relaxes and his biggest irritation.Books mentioned in the podcast:Patrick Radden Keefe. Empire of painTravis Rieder. In pain: a bioethicist's personal struggle with opioidsAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, May 11). What a Pain. (No.1) [Audio podcast episode]. Chronic pain and autism.https://feeds.acast.com/public/shows/62f7e5928606e40012ca9129

In this episode, Glyn and Konrad talk to Julia Smith, specialist physiotherapist, and Anne Marie van Es, specialist occupational therapist. Both of them work at the Oxford Centre for Children and Young People in Pain (OXCYPP). They discuss how they perceive their roles within a pain management programme, how it differs from the way they were trained and from the way OTs and PTs in other areas may work. They also give advice to OTs and PTs who work with pain patients but not within the context of a pain management programme. Julia and Anne Marie tell us their favourite place on earth, their pet hates, and who they admire in the pain world. Anne Marie also reveals why she was nearly thrown out of the cinema!Due to the length of the interview, this podcast has been split in 2.This is the article Konrad discusses:Jacobs K, Smith A, Heathcote LC, Caes L. Which passengers are on your bus? A taxonomy of the barriers adolescents with chronic pain face in achieving functional recovery. Eur J Pain. (2021) 25:348–58. doi: 10.1002/ejp.1673Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, June, 15). What a Pain. (No.3) [Audio podcast episode]. The role of physiotherapy and occupational therapy in pain management - part 1

In this episode, Glyn and Konrad continue to talk to Julia Smith, specialist physiotherapist, and Anne Marie van Es, specialist occupational therapist. Both of them work at the Oxford Centre for Children and Young People in Pain (OXCYPP). They discuss the evidence base for their work, pacing in some depth, when to stop seeing patients, the difference between functional and biomechanical outcomes and dealing with complex patients. They also explain why they enjoy working with pain patients. This is the article Anne Marie discusses:Suder R, DeBoth KK, Carrick A, Davis J, Farrar B. A Systematic Review of Occupational Therapy-Related Interventions for Pediatric Chronic Pain. OTJR: Occupational Therapy Journal of Research. 2023;43(1):61-73. doi:10.1177/15394492221110544Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, July, 4). What a Pain. (No.4) [Audio podcast episode]. The role of physiotherapy and occupational therapy in pain management - part 2

In this episode, Glyn and Konrad talk to Sofi Fateh. Sofi is now 18, but developed chronic widespread pain when she was 12. Having seen many doctors, having had many tests and scans and different treatments which did not work, she finally entered a pain rehabilitation programme. Sofi explains her pain journey. Sofi's story is interesting, fascinating, emotional and tells us much about the journeys pain patients take. Hopefully it will be helpful for pain patients, those around them and healthcare professionals.You can find Sofi's book here::https://static1.squarespace.com/static/635c953701bf033911888116/t/643f5cd253452876c9a3349d/1681874157976/1600X2560_AND-KITES_EDITION-ONE_PHONE-TABLET.pdfYou can find a list of Paediatric pain management programmes around the world here:http://childpain.org/wp-content/uploads/2023/04/PedPainClinicList_23-1.11.23-CLEAN.pdfAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Williams, G. and Jacobs, K. (Hosts). (2023, July, 4). What a Pain. (No.5) [Audio podcast episode]. A patient experience - an interview with Sofia Fateh PART 1

In this episode, Glyn and Konrad initially discuss an animation that was made by Verena Hinze, researcher at the University of Oxford. This animation is about teenagers with chronic pain giving advice to other teenagers with chronic pain. The link to the animation on Youtube can be found below.Next, they talk to Professor Suellen Walker. She is regarded as a world-wide expert on neuropathic pain in children and adolescents.She is a Reader and Honorary Consultant in Paediatric Anaesthesia and Pain Medicine and has worked at Great Ormond Street Hospital (GOSH) since 2002. She has held a clinical academic post at UCL Institute of Child Health and GOSH since 2005. Animation: Advice on living with chronic pain from and for young people with chronic painhttps://www.youtube.com/watch?v=CW-YHWvB_lU&t=1sAuthors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Jacobs, K. and Williams, G. (Hosts). (2023, September 6). What a Pain. (No.6) [Audio podcast episode]. Neuropathic pain. An interview with Suellen Walker.

Glyn and Konrad are at an international conference about pain in children and adolescents in Halifax, Canada. First, they discuss some of the talks they found interesting. Their main guest is Dr Susmita Kashikar-Zuck, from Cincinnatti Children's Hospital and the university of Cincinnatti. They talk about 3 of the most interesting findings from her own research, and then discuss what happens to children and young people with chronic pain when they are adults. At the end, Glyn and Konrad argue about who is paying for beers.Dr Kashikar-Zuck's publication about the long-term outcomes of chronic pain:Kashikar-Zuck, S; Cunningham, N; Peugh, J; Black, WR; Nelson, S; Lynch-Jordan, AM; Pfeiffer, M; Tran, ST; Ting, TV; Arnold, LM; et al. Long-term outcomes of adolescents with juvenile-onset fibromyalgia into adulthood and impact of depressive symptoms on functioning over time. PAIN. 2019; 160:433-441.Books mentioned by Dr Kashikar-Zuck:Zeltzer L.K., Zeltzer P. Pain in Children and Young Adults: The Journey Back to Normal. Two Pediatricians’ Mind-Body Guide for Parents. Shilysca Press; Encino, CA, USA: 2016. Zeltzer, L. K., & Schlank, C. B. (2005). Conquering your child's chronic pain: a pediatrician's guide for reclaiming a normal childhood. New York, NY: HarperCollinsZoffness, Rachel; Schumacher, Mark A. (2020). The Pain Management Workbook: Powerful CBT and Mindfulness Skills to Take Control of Pain and Reclaim Your Life. Oakland, New Harbinger Publications.Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Jacobs, K. and Williams, G. (Hosts). (2023, October 19). What a Pain. (No.8) [Audio podcast episode]. What happens to young people with chronic pain when they are adults?

In this episode, Glyn and Konrad initially discuss a symposium in Halifax, Canada they both attended about readiness for change prior to attending a pain management programme. Many young people find it difficult to make the transition from thinking about their chronic pain as an acute problem to a chronic problem. The strategies for dealing with either are very different. Not all young people are ready to make such a change in their thinking. The question is how we prepare young people better for their intensive rehabilitation programmes. Glyn talks about one of the studies that has one of the potential solutions.Following on from this, we talk to Navil Sethna, who is the Clinical Director, Mayo Family Pediatric Pain Rehabilitation Center and Professor of Anesthesiology Harvard Medical School Boston Children’s Hospital. Navil talks about how he got involved in pain, how he set up the first interdisciplinary pain management service for children in the world, some of the basic requirements of pain management programmes, and which children are more likely to benefit from programmes.Authors:Dr Glyn Williams is a Consultant paediatric anaesthetist and lead for the pain management service at Great Ormond Street Hospital, London.Dr Konrad Jacobs is a Consultant clinical psychologist and rehabilitation lead for the Oxford Centre for Children and Young People in Pain. Twitter: @konradjacobsContactPlease email Glyn and Konrad with comments and feedback: whatapainpodcast@gmail.comFollow Konrad on twitter: @konradjacobsPodcast reference (APA style):Jacobs, K. and Williams, G. (Hosts). (2023, November 15). What a Pain. (No.9) [Audio podcast episode].Interdisciplinary pain programmes.