Too Peas In A Podcast Mandy Hose and Kate Mulholland
Cally talks about Smith-Magenis Syndrome, Special Olympics and her girl Amelie
Mandy and Kate chat to Cally, Director of Smith-Magenis Syndrome Australia and Chair of Melbourne Inner East Special Olympics Club. Cally’s 18-year-old daughter Amelie was diagnosed with rare chromosonal disorder Smith-Magenis Syndrome (SMS) at age three.
Cally chats about Amelie’s life with SMS, including some chronic sleep issues that saw her falling asleep in funny places during the day, the commonly overlapping symptoms with autism, ADHD, OCD and sensory issues, and her journey through school in the special education system.
Cally has been involved in Smith-Magenis Syndrome Australia for several years and is now their Director. The organisation’s key activities include raising awareness, particularly on Smith-Magenis Awareness Day coming up shortly on November 17, welcoming and supporting families of newly-diagnosed children with education, resources and community, and running camps.
Cally is also the powerhouse Chair of Melbourne Inner East Specialy Olympics Club, where Amelie is involved in athletics and snow skiing. This is where she met Mandy and Molly! Cally talks about her experiences attending the Special Olympics National Games in 2022, and the World Games in Berlin earlier this year. Thanks for sharing your story with us Cally!
- Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas Love
- Join our Facebook Hangout
- Find us on YouTube
- Buy our book The Invisible Life Of Us!
- Leave us a speakpipe
- Help spread the love for Too Peas by rating and reviewing us!
- Melbourne forecast for Thursday November 16 - Shower or two, 18 degrees
Thank you for supporting Too Peas In A Podcast! We love to hear from you, please contact us here:
View all episodes
4. Rachael talks about her gorgeous boy Robbie56:40Mandy and Kate chat to Rachael, pea mum to a beautiful 5-year-old Robbie, and the Tasmanian representative for Angelman Syndrome Association Australia.Rachael shares the story of her pregnancy, moving to Hobart in preparation for Robbie’s birth, time in the NICU, Robbie’s surgery at only 9 days of age, and his diagnosis of the rare genetic disorder Angelman Syndrome. Rachael talks about adjusting to Robbie’s medical complexities, feeling like the whole world had changed around her, experiencing the hard days of isolation, loneliness and comparison, but receiving some wonderful support from some amazing and insightful friends. Rachael connected online with other Angelman Syndrome parents and developed new and supportive friendships, leading to her role in the association. The Association provides support, information, education, networking, research promotion and advocacy for people and families affected by the syndrome. We also learn that Robbie is a gentle and beautiful boy, he loves holding hands and touching faces, he’s patient and works incredibly hard at his therapies, he’s a good big brother and and loves music! Thanks for sharing your story with us Rachael! For more information about the Angelman Syndrome Association Australia, visit their website or find them on Facebook and Instagram. You can also follow Robbie’s story on Instagram too. Plus: Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday February 29(!) - Cloudy, 25 degrees
Snap Pea 9130:34Snap Pea 91!Mandy and Kate chat about concerts, and listen to your speak pipes xxx
3. YouTuber Lewis talks about clefts, community and all things Lewlyfe53:01Kate and Mandy chat to Lewis from northwest Tasmania, a lovely young guy who studies media and communications and runs YouTube channel Lewlyfe. Lewis is part of the pea community as he was born with a bilateral cleft lip and palate.Lewis talks about growing up managing all the challenges of multiple surgeries, speech therapy and regular check ups with a whole range of doctors and specialists. Primary school was not much fun as he went to a sporty school when he wasn’t into sports, but he found his feet and a loving and supportive community at high school, where his friends loved drama and music as much as he did.Lewis also talks about the impact on his mum and dad, their work in supporting other cleft families, and the support and kindness the whole family received from their church community. Kate and Mandy were also extra impressed to hear the news that Lewis’ dad owns an IGA supermarket, given they’re both very frequent shoppers at their local. Lewis also talks about making the decision to no longer undergo further surgeries, as he’s happy and confident as he is. Lewis is focused on studying, running his YouTube channel and staying involved in his local community.Thanks for sharing your story with us Lewis! Subscribe to Lewis’s YouTube channel Lewlyfe and help him bump up his followers, visit the Lewlyfe website and follow Lewis on Instagram. Visit CleftPals Victoria and Cleft Connect Australia for more information about cleft and palate conditions. Plus: Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday February 22 - HOT, late cool change, windy, 38 degrees
2. The Peas are back for 2020-More42:55Part two of "The Peas are back for 2024"
1. The Peas are back for 202449:30The Peas are back for 2024 and listen happily to your speak pipes.Mandy spoke about Tim from Thailand's book https://catalogue.nla.gov.au/catalog/10017028 "With Gratitude"Kate is loving Megan Williams book (she accidentally used the wrong sir name in the episode, sorry Megan) https://www.booktopia.com.au/let-s-never-speak-of-this-again-megan-williams/book/9781922790392.html you can get it here.And Kate's amazing cousin Amy has written this beautiful book GATHER, and you can get it here or follow her on Instagram at underground_coffshttps://chocdaisy.square.site/product/gather-by-amy-barrett/410?cs=true&cst=custoMelbourne's forecast for tomorrow is a lovely 26 with sunshine.
Summer Series: Lisa Cox is changing the way disability is represented in mainstream culture01:22:13