My life with dementia | A Dementia UK podcast

What happens when dementia care doesn’t reflect your traditions, your food or your culture?In this episode, Safia – one of Dementia UK’s first dementia specialist Admiral Nurses for Black, African and Caribbean communities – speaks to Elene, whose mum lived with mixed dementia. They discuss why cultural awareness, though often overlooked, is so important to provide compassionate, person-centred dementia diagnosis and care. Elene’s dementia story offers insight and reassurance for families who feel unseen or misunderstood in dementia care. Book a free appointment in our clinic for Black, African and Caribbean communitiesLearn about dealing with stigma around dementiaFind out more about Dementia UK

Inspired by Tommy and Andrew's conversation in the pub, Hilda and Vic share advice and insight from their perspectives as dementia specialist Admiral Nurses.In this episode, they explore:the benefits of music for people living with dementiastrategies for male carers to share more of their emotional lives with friendshow grief can impact carers long before their loved one has diedIf you haven't heard Tommy and Andrew's episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic

Tommy and Andrew met in a pub in Liverpool to talk about something many men struggle to discuss openly: dementia.Tommy has young onset Alzheimer's disease and Andrew is a carer for his mum, Ann, who received her vascular dementia diagnosis during Covid.In this episode, they talk about navigating the emotional ups and downs of living with dementia and how expectations around masculinity have affected their experiences.Tommy and Andrew’s dementia story challenges stereotypes and opens up an honest conversation about how men experience dementia, whether they’re living with the condition themselves or caring for someone with a dementia diagnosis.Get in touch with one of our dementia specialist Admiral Nurses for tailored adviceFind out more about Dementia UKGet more information on dealing with grief

Hilda and Vic discuss Jules's dementia story, sharing advice and insight drawing on their clinical experience as dementia specialist Admiral Nurses.In this episode they explore:how to manage if the person you’re caring for becomes angry or aggressivehow to cope when multiple family members are living with dementia at the same timehow to create joyful memories even as someone’s dementia is progressingIf you haven't heard Jules’s episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic

When Jules's uncle started showing symptoms of dementia, she had no idea that soon she'd be caring for multiple family members, who all received a dementia diagnosis around the same time.In this episode, Jules discusses some of the more challenging symptoms of dementia, such as aggression, and her dedication to keeping her family safe and happy.Jules’s dementia story offers comfort to anyone facing the challenges of dementia, while reminding us that joy is still possible.Our dementia specialist Admiral Nurses can helpFind out more about Dementia UKLearn how to keep safe when you care for someone with dementia

Hilda and Vic go deeper into some of the themes from Chloe and Amy's dementia story, explaining what families can do next from their perspectives as dementia specialist Admiral Nurses.They cover:how schools can support young carersthe importance of counselling to help young carers manage the emotional strain of looking after someone with a dementia diagnosishow Admiral Nurses can help families prepare for the future through advance care planning, including lasting power of attorneyIf you haven't heard Chloe and Amy’s episode yet, we recommend giving it a listen first. You'll find it right next to this one in your podcast feed.Support and resources:Need support? Speak to an Admiral Nurse like Hilda and Vic