Young Tongues

In this episode of the Young Tongues Podcast, Barbara speaks with Elfie, a fellow tongue cancer survivor whose remarkable story is one of resilience and reinvention.Elfie opens up about her life-changing journey—from surviving a traumatic accident in her twenties that led to the amputation of her left leg, to facing a tongue cancer diagnosis years later. She shares the emotional and physical toll of treatment, including the loss of taste and speech difficulties, and how she found strength through it all.Despite multiple surgeries and setbacks, Elfie’s defiant spirit shines through. Post-recovery, she embraced challenges like rock climbing and axe throwing, redefining what’s possible after cancer. She also discusses her recent contribution to the book Unleashing the Courageous Feminine, a therapeutic milestone and a celebration of her voice. The episode concludes with a heartfelt conversation about the power of support groups, raising awareness, and holding onto hope for life after cancer.

In this episode of the Young Tongues Podcast, Barbara interviews Krishna Suchak, a consultant pathologist. Krishna explains her work, describing what a pathologist does, including analyzing tissue and fluid samples to diagnose cancer. She details the workflow from biopsy to diagnosis, the interpretation process, and how pathologists work with multidisciplinary teams. Krishna also discusses the significance of clear margins in pathology reports. Listener questions are addressed on topics such as genetic testing, the risk of biopsies spreading cancer, and the method of interpreting unusual looking cells in lymph nodes. The episode concludes with a focus on the future of cancer diagnosis and the role of primary care education in improving early detection.

In this episode of the Young Tongues Podcast, Barbara talks with Lynsi from Bedford, UK, about her journey with head and neck cancer. Diagnosed at 31, Lynsi shares her experience through multiple surgeries—including flap failures—and chemo-radiation after a recurrence. She discusses the challenges of moving between NHS trusts, the importance of self-advocacy, and how treatment affected her relationship with food and body image. Lynsi also opens up about the emotional impact of potential fertility loss and her hopes for the future.

In this episode of the Young Tongues Podcast, Barbara speaks with Susan, one of the founding members of the support group for young people with tongue cancer. Susan recounts her journey, which began with a small, painless sore on her tongue and led to a series of misdiagnoses over nine months. Eventually diagnosed with stage four tongue cancer, she underwent intensive treatment—including a hemiglossectomy, neck dissection, chemotherapy, and radiation—all during the height of the Covid-19 pandemic. Susan opens up about the profound emotional and physical challenges she faced, from severe weight loss and "cancer anorexia" to the psychological toll of the illness. She highlights the critical role of therapy, self-advocacy, and the support she found within the Young Tongues community. Now nearly four years cancer-free, Susan reflects on how the experience reshaped her outlook on life and emotional well-being, and shares her ongoing dedication to supporting others in her role as a trustee of Young Tongues.

In this heartfelt episode of the Young Tongues Podcast, co-hosts Barbara and Jamie reunite to reflect on both personal and professional milestones. Jamie marks five years since her cancer diagnosis, while Barbara candidly shares her ongoing journey with chronic fatigue syndrome and mental health challenges. The conversation also celebrates key achievements, including Barbara’s recent appearances at major medical conferences and the launch of Unmuted, Young Tongues’ inaugural Annual Impact event. Together, they spotlight persistent issues facing tongue cancer patients - particularly the need for better biopsy pain management - and outline upcoming efforts to gather patient data to drive systemic change. The episode closes with a health update on former guest and friend, Molly, as she navigates increasingly limited treatment options. Barbara and Jamie also announce a short summer break and extend an invitation to potential sponsors looking to support the podcast’s mission.

In this episode of the Young Tongues Podcast, host Barbara sits down with her friend and fellow Young Tongues original, Molly—an adventurous veterinarian from Kansas. Molly shares her deeply personal journey with tongue cancer, from her initial diagnosis in 2020 to her current experience living with chronic cancer. She opens up about her treatment regimen, emotional challenges, and the crucial role of self-advocacy and social support. Molly highlights the importance of empathy and understanding from loved ones and healthcare providers alike. She also reflects on the power of living in the moment and embracing the time she has. Through her candid and courageous story, Molly offers insight, strength, and encouragement to others navigating life with chronic cancer.

In this episode of the Young Tongues Podcast, Barbara sits down with Rachel Corby, a fellow tongue cancer survivor, to share her powerful story of diagnosis, treatment, and healing. Rachel opens up about receiving her diagnosis shortly after giving birth. She highlights the challenges of undergoing surgery and radiation while caring for two young children. She candidly discusses the physical and emotional toll of treatment, including the impact on her ability to eat and speak, and how she adapted to those changes. Rachel also reflects on the vital support she received from her family and the sense of connection and strength she found through the Young Tongues community. Throughout the conversation, she emphasizes the importance of self-advocacy, shares the lessons cancer has taught her, and describes how her outlook on life has evolved.

In this episode of the Young Tongues Podcast, host Barbara interviews Ben, one of the original members of the peer support group. Ben shares his journey from initial diagnosis of tongue cancer to his extensive treatment and the long-term side effects he has endured. He discusses the moment he realized something was wrong, the process of his diagnosis, and the multitude of treatments he underwent, including the removal of 80% of his tongue and subsequent reconstruction. Ben elaborates on the challenges of radiation, describing the physical and emotional toll it took. He also explores the lasting impact on his speech and how he manages social interactions when people struggle to understand him. Beyond speech, the podcast delves into Ben's challenges with eating and maintaining oral health, especially dealing with painful high-fluoride toothpaste post-radiation. The discussion also covers managing radiation-induced fibrosis in his neck, the importance of ongoing physiotherapy, and pain management strategies. Finally, the episode highlights Ben's active involvement in creative arts and community support, exemplifying his resilience and generous spirit in helping fellow cancer survivors.

In this episode of the Young Tongues Podcast, Barbara speaks with Jarrod from Melbourne, Australia. Jarrod shares his personal story of being diagnosed with tongue cancer at age 35, the challenges he faced during diagnosis, treatment, and recovery, and how a strong medical background and support from family helped him persevere. He underwent extensive surgery, radiation, and chemotherapy, experiencing severe side effects but ultimately emerged stronger, focusing on family and health. Jared now aims to support others by sharing his journey and working with organizations like Head and Neck Cancer Australia. His remarkable recovery and resilience serve as an inspiration for others.