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theMSguide podcast

Run by an expert MS patient (I've had it 31y!) for other patients

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect

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  • 1. Testing the use of AI in MRI for MS

    22:31||Season 2, Ep. 1
    The use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time.Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)

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  • 19. Another New AI Tool That Will Transform Your MS Care

    32:41||Season 1, Ep. 19
    All the promised trial details are here:Boston, USBrigham and Women's HospitalPrincipal Investigator: Tanuja Chitnis, MDtchitnis@bwh.harvard.eduOttawa, CanadaThe Ottawa HospitalPrincipal Investigator: Gauruv Bose, MDgabose@toh.caLondon, UKThe Royal London HospitalPrincipal Investigator: Sharmilee Gnanapavan, Dr.s.gnanapavan@qmul.ac.ukInclusion criteria:Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range of 18 to 60.The participant must have an Extended Disability Status Scale (EDSS) score at screening less than or equal to 6.5, inclusive. As background, the main study is 6 months in duration, with an option for the participant to continue for an additional 6 months.For reference, here is a public link where we publish info on the MS study, including site contact info:https://clinicaltrials.gov/study/NCT05781113?term=NCT05781113&city=&rank=1Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)
  • 18. Sex in MS : the things you need to know from Dr Brown

    26:44||Season 1, Ep. 18
    ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.Here are the promised resources we discussed.https://mstrust.org.uk/a-z/sexual-problems-women-mshttps://mstrust.org.uk/a-z/sexual-problems-men-mshttps://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationshipshttps://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-workhttps://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exerciseshttps://www.thecouplesummit.org/blog/relationship-check-inshttps://www.gottman.com/blog/category/column/the-four-horsemen/https://www.gottman.com/blog/category/love-relationships/Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.Just email me at dominic@theMSguide.comDr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College LondonPlease Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)
  • 17. Sex in MS : the things you need to know from Dr Brown

    18:39||Season 1, Ep. 17
    Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties.Here are the promised resources we discussed.https://mstrust.org.uk/a-z/sexual-problems-women-mshttps://mstrust.org.uk/a-z/sexual-problems-men-mshttps://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationshipshttps://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-workhttps://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exerciseshttps://www.thecouplesummit.org/blog/relationship-check-inshttps://www.gottman.com/blog/category/column/the-four-horsemen/https://www.gottman.com/blog/category/love-relationships/Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies.Just email me at dominic@theMSguide.comDr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College LondonPlease Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)
  • 16. Digital and Social changed the MS world. Meet the man behind it and hear his incredible story.

    35:09||Season 1, Ep. 16
    If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources. If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)
  • 15. Men get better MS treatment than women.

    34:40||Season 1, Ep. 15
    Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers.Learn more about Vicky here:https://mr.research.columbia.edu/content/victoria-m-leavittand delve into her vast amount of research here:https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=enIf you'd like a copy of the paper please email me asking for it. dominic@theMSguide.com Please Subscribe to the podcast or the YouTube channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you.https://www.patreon.com/theMSguidetheMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you.After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguideLinkedIn: https://www.linkedin.com/company/themsguide/Instagram: @theMSguideFacebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!)
  • 14. Joe Bush is running the London Marathon and Raising £££ for MS Research

    05:51||Season 1, Ep. 14
    Joe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine.Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebushFollow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1 Read more about the research support from the MS Society here: https://www.mssociety.org.uk/researchRead more about the London Marathon here: https://www.tcslondonmarathon.com/