That's So Chronic
Lauren Dewhirst & Musculocontractural Ehlers Danlos Syndrome (mcEDS)
Hi! Welcome to That’s So Chronic. Ohhh this episode is a big one!! Today I sat down with Lauren Dewhirst during a rainy Dunedin day. Lauren was finally diagnosed after years of uncertainty with mcEDS - musculocontractural ehlers danlos syndrome. There are 13 different subtypes of EDS and mcEDS is very rare. At the time of recording, Lauren is one of two people living with this diagnosis in New Zealand. It’s kind of like a “That’s So Chronic exclusive” if you will!
Lauren also has a variety of other diagnoses - including anaphylaxis, arthritis, mast cell activation syndrome, osteopenia, and gastroparesis which we will talk about today.
In this episode Lauren shares the journey to her diagnosis, explains what anaphylaxis feels like, gives us an insight into the countless hospital admissions she has experienced, and teaches us the ins and outs of life with a feeding tube.
Content warning: throughout this episode we do talk about death, which might be distressing to some listeners.
It has been a real honour getting to know Lauren, and I think the episode really speaks for itself. I can’t wait for you to listen!
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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.