Multiple Sclerosis Society of Ireland Podcast

In the eighth episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Prof Susan Coote to learn how we can use physiotherapy to help progressive MS.Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Dr Susan Coote is a physiotherapist specialising in neurological rehabilitation. For over 15 years she led the MS research team at UL researching the benefits of exercise and physical activity to reduce symptom severity and improve quality of life for people with neurological conditions living in the community.Prof Coote has published over 70 research papers and received over €1.5m in research funding supervising many PhD students in the area of exercise and MS.She currently works in MS Ireland running projects funded by SlainteCare integration fund, the Social Innovation Fund and Disability Services which implement into practice the research findings and learnings of the benefits of exercise.

In the seventh episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Una FitzGerald to learn about research into MS in Ireland.During the interview Una mentioned two studies and these are the links.PMSMatTrain (which stands for progressive MS-Material-Training): https://pmsmattrain.eu/ AIMS-RN (which stands for All-Ireland MS Research Network): https://aims-rn.org/Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Dr FitzGerald's research focus is on developing an understanding of the molecular mechanisms underlying neurodegenerative disorders such as multiple sclerosis and Parkinson's disease. After graduating from NUI Galway with a BE (Industrial) in 1983 and an MSc in Biotechnology in 1985, she worked in the biotech sector for five years before returning to academia to copmlete a PhD in molecular biology at the University of Strathclyde, Glasgow. Dr FitzGerald returned to Ireland in 2003, taking up a lectureship in biomedical engineering at NUIG in 2005. Since then the main focus of the FitzGerald group has been multiple scelosis and other brain disorders including Parkinson's disease. The group has also studied the normal development of the cerebellum.Dr FitzGerald is the Director of the Galway Neuroscience and she represents MS Ireland on the MS International Federation's International Medical and Scientific Board. She has also recently joined the committee of the Dementia and Neurodegeneratin Network, Ireland. Since May 2019, she is coordinating a €3.9 million EU-funded project that aims to work with researchers from Denmark, Germany, Belgium, France, Italy, Spain and the Czech Republic to create new devices and treatments for multiple sclerosis.In effort to reduce the negative impact that lab research has on the enviroment, Dr FitzGerald initiated the 'Galway Green Labs' effort at NUIG, triggering the implmentation green practices the CÚRAM lab, in preparation for green lab certification' (see mygreenlab.org), which was awarded in late 2019. For more information on this achievement, watch our documentary movie 'The time to green our labs is now' (https://vimeo.com/375847945).https://www.ms-society.ie/https://twitter.com/MSIRELAND/https://www.facebook.com/MultipleSclerosisIreland/

In the six episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Jonathan Egan to learn how the carer and support the cared.Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Dr Jonathan Egan is an academic and chartered health and clinical psychologist. He has also trained in both attachment and affect phobia therapies. His research has been in relation to trauma, its effect on a person's psychophysiological well-being. His other clinical and research interest is in how our own learned internal models of relationships which we learn in childhood can affect both professional caregivers and in people who are diagnosed with chronic health conditions and whether they can learn to improve their ability to seek help effectively (without shame) in order to receive effective care and to be 'met as a person' who is an expert by-experience in their own health status and needs.https://www.ms-society.ie/https://twitter.com/MSIRELAND/https://www.facebook.com/MultipleSclerosisIreland/https://www.instagram.com/multiple_sclerosis_ireland

In the fifth episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Jonathan Egan to learn how we can manage fear and anxiety.Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Dr Jonathan Egan is an academic and chartered health and clinical psychologist. He has also trained in both attachment and affect phobia therapies. His research has been in relation to trauma, its effect on a person's psychophysiological well-being. His other clinical and research interest is in how our own learned internal models of relationships which we learn in childhood can affect both professional caregivers and in people who are diagnosed with chronic health conditions and whether they can learn to improve their ability to seek help effectively (without shame) in order to receive effective care and to be 'met as a person' who is an expert by-experience in their own health status and needs.https://www.ms-society.ie/https://twitter.com/MSIRELAND/https://www.facebook.com/MultipleSclerosisIreland/https://www.instagram.com/multiple_sclerosis_ireland

In the fourth episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Lorna Spellman (Occupational Therapist) to learn how occupational therapy can help people with multiple sclerosis become more resilient, by using the many tool and techniques which an OT can advise.Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Lorna Spellman Since graduating in 2015 with a degree in Health Promotion and Physical Activity, I wanted to pursue a career that focused on people’s health and well-being.I discovered the world of Occupational Therapy and found it aligned with my values and my passion to enable people to increase their independence in a way that is meaningful to them. I returned to academia in 2017 and completed a Masters in Occupational Therapy.Since then, I have worked with a broad range of people across a variety of practice areas in both the NHS and HSE Health services As Occupational Therapists, we focus on enabling engagement in daily activities and promoting both physical and mental health.https://www.ms-society.ie/https://twitter.com/MSIRELAND/https://www.facebook.com/MultipleSclerosisIreland/https://www.instagram.com/multiple_sclerosis_ireland

In the third episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Jonathan Egan to learn how to look after the mental health of the people who care for us. In this episode we discuss how it is a team effort between the cared and the carer.Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).Dr Jonathan Egan is an academic and chartered health and clinical psychologist. He has also trained in both attachment and affect phobia therapies. His research has been in relation to trauma, its effect on a person's psychophysiological well-being. His other clinical and research interest is in how our own learned internal models of relationships which we learn in childhood can affect both professional caregivers and in people who are diagnosed with chronic health conditions and whether they can learn to improve their ability to seek help effectively (without shame) in order to receive effective care and to be 'met as a person' who is an expert by-experience in their own health status and needs.https://www.ms-society.ie/https://twitter.com/MSIRELAND/https://www.facebook.com/MultipleSclerosisIreland/https://www.instagram.com/multiple_sclerosis_ireland