Invisible Not Broken - Chronic Illness Podcast Network

Share

Sex, Shame, and Chronic Illness An Interview with Dr. Lee Phillips


Dr Lee Phillips


Like any discussion about sex there are some hot button issues. In this episode Dr. Phillips and I are circling around what we got the most emails about, shame. When sex comes up in many cultures shame seems to peek around the shadows for everyone but when one is disables or is living with a chronic condition shame can become pretty bold. This can take shape in changing romantic relationships, new ways to reimagine sex with physical limitations, and even the question of when to bring up disability or chronic conditions with new romantic partners. Please take a listen to our new mostly monthly segment about sex, disability, & chronic illness with Dr. Lee Phillips.


Be sure to email or comment below with and questions or topics for next month.

We might not be able to answer but we will read.


Trigger Warnings: We do cover sexual identity, shame, sexual assault, sex work, and depression.


Please share this episode, comment, and subscribe.

Until Next week:

Be Kind. Be Gentle. Be a Badass.

More Episodes

4/1/2021

Roundtable - Ableism (Part 1) with Monica, Eva and Jason

Ableism comes in all shapes and sizes AND we experience it both internally and externally. Monica (Explicitly Sick), Eva (Humancare), and Jason (Discomfort Zone) talk about how they have experienced and dealt with ableism personally as well as give advice on what could work for others…plus other stuff around chronic illness and crap :pTRANSCRIPT HERE (it's not fab, but hopefully it does the job, sorry!)Finding the people that won't tell you you're crazyAll about mobility aids and our perceptions of them vs. the perception of othersgadgets that help us (ex: reMarkable tablet - not a paid promo, just love it!)“Do I deserve this?” - what we ask when we spend money on ourselvesGaslighting Travel adaptationsAbleism in healthcareEquitable vs. Fair (“everyone gets the same” vs. “everyone gets what’s needed”)3 last pieces of advice (1 hour in)“Taking care of yourself is not losing ground ex) if you decide you need a wheelchair, you are not taking a step back, you are not losing power. I wish someone told me that a decade ago” - Monica“Battle ableism first starts with how you receive things yourself. there is a lot you can do internally that will help you battle that in your outside world.” - Eva“Gaslighting is tough - especially with family and personal relationships. There are certain times when it can be really intense, and at times you need to give yourself distance from that person… it may be the right decision to cut them out of your life… [at the same time] it’s often people who are incredibly well-intentioned and good people…so take that into consideration.” - JasonStay tunes for Ableism - Part 2! (Which will include Dr. Lee)How have you experienced ableism - internally and externally? Let us know what works for you in our Facebook Group!**ALSO, BIG ANNOUNCEMENT!Monica and Jason are both seeking your stories on gaslighting. These stories could be a part of a long-form audio story or in Monica's Magazine. Send us an email at contact@invisiblenotbroken.com with a written or oral summary of your story. In the subject line, please write "gaslighting stories" as well as your country of residence._____PLEASE SHARE 😍 RATE & REVIEW 👍DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS :EXPLICITLY SICKWITH MONICAHUMANCAREWITH EVADISCOMFORT ZONEWITH JASONSEX AND CHRONIC ILLNESSWITH DR. LEECHECK OUT OUR OFFICIALINVISIBLE NOT BROKEN FACEBOOK PAGEAND OUR INSTAGRAMS!@HUMANCARE_PODCAST@DRLEEPHILLIPS@DZONEPODCAST@EXPLICITLYSICK@INVISIBLENOTBROKENBE KIND. BE GENTLE. BE BADASS.
2/15/2021

Announcement from HumanCare: Call for stories!

Hello Humancare community. I have a very special announcement. I am finally launching a new collaborative segment of the podcast, a project I've been dreaming of putting out there for years now, and it requires your participation to come to life:Humancare Stories.An awareness and conflict resolution project.The Humancare Stories segment will be a collection of anonymously contributed stories from listeners like you, about negative interactions experienced within the context of healthcare – whether that be an interaction with a patient, provider, loved one, or stranger.For example, submitted stories could be about a disheartening dialogue with a doctor, an offensive conversation with a romantic partner, or even an infuriating exchange with someone in a waiting room. Essentially any person-to-person interaction related to one’s health journey.After the submission of a story through voice recording, these stories are validated and dissected before being published on the Humancare podcast. (All submissions, will be reviewed although only a select few stories will be chosen to be published.)For those that are, these episodes will begin by playing the original recording of the story.Then as the host, I will analyze “what happened” from both a factual and experiential viewpoint.From there, I will present to you, the listeners, thought-provoking reflection questions paired with insights from a board of advocates, as well as tools and suggested resources– all of which aim to stimulate a potentially different way of looking at the story told that best serves both parties involved.The purpose is to be both supportive and proactive.It isn’t about choosing sides. It isn’t about being right or wrong.It’s about shedding the labels. It’s about removing the ego.It's about seeing one’s self as human, seeing that other person as human – as awful as the interaction may have been - and finding a common ground as two humans.I am looking to encourage listeners, like you, to adopt tools to mentally, emotionally and physically prepare you for similar situations in your lives going forward.I hope to provide you with alternative options in terms of actions and reactions so that you can feel a greater sense of control going forward.I believe that if we individually shift our approach to these often angering, upsetting, frustrating interactions, that we can collectively and collaboratively shift the broken relationship dynamics within healthcare as a whole.Again, it isn’t about choosing sides. It isn’t about blame or shame. No one wins in these interactions. No one.The way we approach these difficult conversations need to change.You know it. I know it. We all know it.At the end of the day, relationships in the context of healthcare are between two humans just like any relationship.And that’s ultimately the purpose of this project:to humanize healthcare first through humanizing our stories.If you are open to sharing your story with the community, text “I want to share my story” to 585-484-0232. From there I will send you the submission requirements.While I will need to be in contact with you to receive your recording, all stories will be published anonymously.Thanks again for being supporters of the Humancare podcast and our mission to humanize healthcare.