Share
Invisible Not Broken - Chronic Illness Podcast Network
Talking TV, Reading, Happiness, and Parenting: Dione Bullard
•
Monica Michelle is once again joined by musician, chef, and activist Dione Bullard.
Dione lives with End Stage Renal Disease.
In this episode, Monica and Dione discuss:
- Favorite TV shows
- Favorite books
- Moments of delight
- Parenting
02:20 - Platonic
11:42 - Somewhere Boy
14:09 - More favorite shows
21:38 - Favorite books
26:17 - Appreciating moments of delight
30:42 - Parenting through guided experience
Series mentioned in this episode
Available on Apple TV+
- Platonic
- Silo
- Foundation
- Dickinson
Available on Hulu
- Somewhere Boy
- The Righteous Gemstones
- Bewitched
Available on Netflix
- Bridgerton
- Glamorous
- DAHMER
Other
- I Am a Virgo - Available on Prime Video
- Our Flag Means Death - Available on (HBO) Max
- The Life and Times of Total Made Grace
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
More episodes
View all episodes
Author of “Compass Points the Way”: Alexis Kline
23:14Monica Michelle is joined by author Alexis Kline.Alexis lives with Dysautonomia.In this episode, Monica and Alexis discuss: Being a sick teenagerHaving an isolated diagnosisProductivity workflowsTIMESTAMPS00:28 - Alexis’s diagnosis & dog07:18 - Sick teenager road map10:00 - Alexis’s book & workflow16:25 - Having an isolated diagnosis20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Author of “From the Sidelines to the Finish Line”: Emily Falcon
36:47Monica Michelle is joined by author Emily Falcon.Emily lives with ALCAPA.In this episode, Monica and Emily discuss: Growing up sickPost-surgery supportHaving a public bodySelf-motivation and adventuringTIMESTAMPS00:28 - Being a sick kid & Emily’s book title07:28 - Mortality10:16 - Portrayal of disability in media12:21 - Post-surgery support19:23 - Having a public body23:43 - Self-motivation29:46 - Emily’s tips for adventuresThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
A 26-Year Search for the Right Diagnosis: Micaela Hoo
35:19Monica Michelle is joined by writer and entrepreneur Micaela Hoo.Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease.In this episode, Monica and Micaela discuss: Micaela's diagnosis storyHealthcare insuranceTIMESTAMPS00:24 - The start of Micaela’s diagnosis journey14:42 - Gastroparesis & Micaela’s research16:52 - Healthcare insurance, wait times, and bad docs21:52 - Micaela’s research pays off25:52 - Medical closure29:33 - Micaela’s businessesThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Patience, Productivity, and the “Push Through Pain” Mindset: Rita White
28:46Monica Michelle is joined by physical therapist Rita White.Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS.In this episode, Monica and Rita discuss: Rita’s work as a physical therapistToxic productivity mentalityHappiness from self-understanding and patienceTIMESTAMPS00:38 - Rita’s diagnosis and job04:58 - “pushing through the pain”14:10 - handling bad days & Rita’s business19:28 - productivity and patience26:16 - favorite purchases under $100 & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Navigating Work, Relationships, and Parenting with Epilepsy: Sara Staggs
32:09Monica Michelle is joined by author Sara Staggs.Sara lives with epilepsy.In this episode, Monica and Sara discuss: Being a full-time creative with a disabilityPregnancy & parentingDisability disclosureChronic illness in mediaTIMESTAMPS00:30 - Sara’s writing process06:03 - Sara’s diagnosis & college09:44 - Pregnancy & parenting13:37 - Disability disclosure in dating and parenting19:17 - Characters with chronic illness24:36 - Seizure first aid and life with epilepsy27:37 - Favorite purchases under $100The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com#epilepsy #epilepsyawareness #author #UncontrollableBook #SaraStaggs
Adulting on Disability Income, Reflecting on Privilege and Prejudice: Cosmo
38:12Monica Michelle is joined by activist Cosmo C.Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia.In this episode, Monica and Cosmo discuss: PetsLARPingDisability income and surviving on itPrivilege and PrejudiceTIMESTAMPS00:33 - Cats and LARPing12:05 - Adulting on disability income22:01 - Privilege and prejudice31:19 - Deadlines, speech, and steroidsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Resilience & Self-Advocacy in Health, Music, and Culinary Arts: Dione Bullard
41:42Monica Michelle is joined by musician, chef, and activist Dione Bullard.Dione lives with End Stage Renal Disease.In this episode, Monica and Dione discuss: End Stage Renal DiseaseSelf Advocacy as a PatientDion’s Music & CookingTIMESTAMPS06:17 - Dion’s diagnosis14:44 - Music career & food21:42 - Self advocacy26:05 - Disparities in care of dialysis centers31:27 - How to speak with healthcare professionals35:22 - Distilling down our purpose in life37:11 - Favorite apps and culinary toolsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com
Chronic Pain, Opioid Hysteria, and Tech Tools for Advocacy: Kim Luke
41:50Monica Michelle is joined by activist Kim Luke.Kim lives with multilevel spondylosis, POTS, and fibromyalgia.In this episode, Monica and Kim discuss: Kim’s storyPain clinic negligenceDisability tech & advocacyTIMESTAMPS00:51 - How Kim started10:54 - Kim’s work16:03 - Pain clinic negligence19:33 - Healthcare in politics27:08 - Recommendations for teaching and advocacy31:47 - Disability Tech Business Idea36:04 - The flat effect40:12 - Pillows!The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com