Invisible Not Broken - Chronic Illness Podcast Network

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A Conversation With Cosmo: Autism, Porphyria, Long Haul Covid, Media & Disability, & More

A FEW THINGS WE TALK ABOUT IN THE EPISODE

CONTENT WARNING: WE DISCUSS RIGHT TO DIE ON THIS EPISODE. IF YOU ARE ANYONE YOU KNOW NEED HELP PLEASE REACH OUT TO THE CALL THE NATIONAL SUICIDE PREVENTION LIFELINE

1-800-273-8255

OR

TEXT GO TO 741741 TO REACH A TRAINED CRISIS COUNSELOR THROUGH CRISIS TEXT LINE, A GLOBAL NOT-FOR-PROFIT ORGANIZATION. FREE, 24/7, CONFIDENTIAL.

NEURODIVERGENCE AUTISM AND ADD

GAMING AND CHRONIC ILLNESS

US HEALTH POLICIES INHIBITED BY LEADERS IMAGINATIONS AND BOWING TO TEMPER TANTRUMS

PROBLEMS WITH SOME DISABILITY GROUPS & NON PROFITS

WHO CAN TELL WHO’S STORY COMEDY, CANCELLING, AND SERIOUSLY STEPHEN KING WHY WON’T MY BREATS POUT?

SHARED HIGHSCHOOL TRAUMA

WHAT ALL OF US STAY AT HOME DISABLED PEOPLE DO ALL DAY

LONG COVID PATIENTS AND THE ADJUSTMENT PERIOD OF CHRONIC ILLNESS

DISABILITY AND FRIENDSHIPS

WHY HOLD MUSIC SHOULD BE BANNED FOR MENTAL HEALTH.


Name*

Cosmo C

Pronouns

Fey/Fem

Website and handles you want published*

Twitter: @MaelstromMinded Twitch: @TheMaelstromMind

What is the name of your disorder, When did it present?


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7/2/2022

Noah: Spina Bifida* Reading & Empathy* New House ADA* Airlines & Wheelchairs

Noah: Spina Bifida*Scifi Fantasy & Escape* Reading & Empathy* New House ADA* Airlines & WheelchairsNoah and I chat about some of my favorite topics from airlines and wheelchairs* Dr Who and other sci fi shows and how they handle disability* Universal Design * School and disabled Access * Reading Fiction and Building EmpathyInvisible Not Broken is a chronic illness and disability podcast Invisible Not Broken with Monica MichellePlease share with friends and your community Subscribe to our newsletter and the podcastName*Noah MussayPronounshe/himWebsite and handles you want published*@NoahMussay (Twitter), @JulieWestEvents (Twitter I run for work)What is the name of your disorder, When did it present?Spina Bifida. It presented fairly early in my mom's pregnancy, so I was born with it. I also have Arnold Chiari Malformation, hydrocephalus, and scoliosis.What do you want people to know about your daily life?My daily life is relatively unextraordinary. I work. I play video games, I read, and I obsess over Big Brother and Doctor Who. My disability does affect my daily life, and I definitely worry about how I will deal with the struggles it presents when I'm on my own, but I genuinely like my life.What frightens you?I'm frightened by the fact that there are bigger hurdles that I have to face as a disabled person, and although I have a great support system, I sometims fear that I can't rely on myself for that support, and I don't have the benefit of hindsight to know that I can make it work on my own.What is your favorite purchase under $100Mobility aid: My grabber, which I use to grab things that fall or are too high. Less serious answer: Last summer, I purchased an audiobook, which is an in-depth analysis of Season 3 of Big Brother.Anything you want to cover or promote?I definitely think talking about my adoescence would be interesting. I was never an outgoing child, but I had friends in elementary school. Then, in fifth grade, I had a medical situation arise that made it, so I had to be pulled out of school for the rest of the year. When I got returned to school the following year, I felt different and closed off, and it became very hard for me to make friends, and I became a bit resentful that nobody seemed to want to be my friend. It made for a very isolating middle school through high school experience.