Invisible Not Broken - Chronic Illness Podcast Network
A Conversation With Cosmo: Autism, Porphyria, Long Haul Covid, Media & Disability, & More
A FEW THINGS WE TALK ABOUT IN THE EPISODECONTENT WARNING: WE DISCUSS RIGHT TO DIE ON THIS EPISODE. IF YOU ARE ANYONE YOU KNOW NEED HELP PLEASE REACH OUT TO THE CALL THE NATIONAL SUICIDE PREVENTION LIFELINE1-800-273-8255ORTEXT GO TO 741741 TO REACH A TRAINED CRISIS COUNSELOR THROUGH CRISIS TEXT LINE, A GLOBAL NOT-FOR-PROFIT ORGANIZATION. FREE, 24/7, CONFIDENTIAL.NEURODIVERGENCE AUTISM AND ADDGAMING AND CHRONIC ILLNESSUS HEALTH POLICIES INHIBITED BY LEADERS IMAGINATIONS AND BOWING TO TEMPER TANTRUMSPROBLEMS WITH SOME DISABILITY GROUPS & NON PROFITSWHO CAN TELL WHO’S STORY COMEDY, CANCELLING, AND SERIOUSLY STEPHEN KING WHY WON’T MY BREATS POUT?SHARED HIGHSCHOOL TRAUMAWHAT ALL OF US STAY AT HOME DISABLED PEOPLE DO ALL DAYLONG COVID PATIENTS AND THE ADJUSTMENT PERIOD OF CHRONIC ILLNESSDISABILITY AND FRIENDSHIPSWHY HOLD MUSIC SHOULD BE BANNED FOR MENTAL HEALTH.
Website and handles you want published*
Twitter: @MaelstromMinded Twitch: @TheMaelstromMind
What is the name of your disorder, When did it present?
- Acute Hepatic Porphyria (Variegate Porphyria, 14)
- Fibromyalgia (14) CPTSD (very young but unsure)
- Dissociative Identity Disorder (8-9, but realized it at 18)
- Endometriosis (13)
- PCOS (13)
- POTS (14)
- Autism and ADHD (Figured those out at 22 and 28)
- EDS (birth) I may have forgotten some
Interview With Social Security Disability Revealed: Why it’s so hard to access benefits and what you can do about it. Author Spencer Bishins
Interview With Social Security Disability Why It Is So Hard to Access Benefits Author Spencer Bishins
Noah: Spina Bifida* Reading & Empathy* New House ADA* Airlines & Wheelchairs
Noah: Spina Bifida*Scifi Fantasy & Escape* Reading & Empathy* New House ADA* Airlines & Wheelchairs Noah and I chat about some of my favorite topics from airlines and wheelchairs* Dr Who and other sci fi shows and how they handle disability* Universal Design * School and disabled Access * Reading Fiction and Building EmpathyInvisible Not Broken is a chronic illness and disability podcast Invisible Not Broken with Monica MichellePlease share with friends and your community Subscribe to our newsletter and the podcastName*Noah MussayPronounshe/himWebsite and handles you want published*@NoahMussay (Twitter), @JulieWestEvents (Twitter I run for work)What is the name of your disorder, When did it present?Spina Bifida. It presented fairly early in my mom's pregnancy, so I was born with it. I also have Arnold Chiari Malformation, hydrocephalus, and scoliosis.What do you want people to know about your daily life?My daily life is relatively unextraordinary. I work. I play video games, I read, and I obsess over Big Brother and Doctor Who. My disability does affect my daily life, and I definitely worry about how I will deal with the struggles it presents when I'm on my own, but I genuinely like my life.What frightens you?I'm frightened by the fact that there are bigger hurdles that I have to face as a disabled person, and although I have a great support system, I sometims fear that I can't rely on myself for that support, and I don't have the benefit of hindsight to know that I can make it work on my own.What is your favorite purchase under $100Mobility aid: My grabber, which I use to grab things that fall or are too high. Less serious answer: Last summer, I purchased an audiobook, which is an in-depth analysis of Season 3 of Big Brother.Anything you want to cover or promote?I definitely think talking about my adoescence would be interesting. I was never an outgoing child, but I had friends in elementary school. Then, in fifth grade, I had a medical situation arise that made it, so I had to be pulled out of school for the rest of the year. When I got returned to school the following year, I felt different and closed off, and it became very hard for me to make friends, and I became a bit resentful that nobody seemed to want to be my friend. It made for a very isolating middle school through high school experience.
Laura Mustard: VATER Syndrome Singing Through It COVID and Performance Art Disability and the Media
Invisible Not Broken is back with singer songwriter Laura Mustard!We talk art, writing, and music with chronic illness and disabilityCute Dogs Artists Supporting ArtistsDisability in the mediaWhy starving artist is a privilege issueRereading old journals the trauma and the content miningwww.lauramustard.com https://www.youtube.com/user/lauramustardmusic https://open.spotify.com/artist/0yoEf2gicVybjO38cQJfmL https://www.facebook.com/lauramustardmusic @lauramustardmusic https://www.instagram.com/lauramustard/ @lauramustard https://twitter.com/mustardlaura @mustardlaura DISORDER INFORMATIONWhat is your disorder?VATER Association and Latex AllergyAt what age did your disorder present?Birth, but latex allergy was diagnosed around age 7 and different catheters/stomas were added/changed over timeWhat was your life like before your disorder?It's always been present, but mobility was easier before the indwelling catheter was added this summer, it was also easier to eat before all the cross allergies were known with the latex allergy