Giving Health a Voice

Understanding people’s experiences of health care for patients with chronic conditions is critical to evaluate and improve services, and to ensure that health care is organised in a way that addresses what really matters to people. But patient outcome and experience data has never been collected in such a large scale international systemic way to make patient voices heard in health policy making. However, the OECD is seeking to change this with its first of a kind survey, the OECD Patient Reported Indicator Survey (PaRIS) - a brand-new international survey of outcomes and experiences of patients living with chronic conditions who are managed in primary care. The survey is built to measure what matters - the patient voice - to make health systems more people-centered and to collect data that matters to patients themselves. Joining us in this episode are Candan Kendir and Michael van den Berg, health policy analysts at the OECD who are representing the PaRIS team. Guiding the conversation is Rebecca Barlow-Noone, Communications Officer at EPHA, who represents EPHA on the PaRIS Patient Advisory Panel, and is a patient advocate herself.See Rebecca and other advocates in the OECD PaRIS video: https://youtu.be/HiSqVxhBSQs?si=AgxnnrxfsHX1xgXMGiving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on X, The European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

This episode of Giving Health a Voice focuses on the European Parliament elections. It features EPHA's coordinator of our Politics and Health work, Clementine Delforge, in conversation with Frazer Goodwin. The episode examines why the European Parliament elections are important, especially to the future of EU health policy. It then explores how EPHA has worked on the election campaign, what it has sought as priorities from those standing, and what it will do before the vote. The episode ends with a review of how EPHA is providing information to help people decide which political group has supported Health in their manifesto as well as how EPHA will encourage everyone to use their vote. #UseYourVote Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on Twitter, the European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

This episode focuses on the "economy of wellbeing," a globally transformative concept. Our guest is a leading figure in this movement - Christine Brown, Head of the WHO European Office for Investment for Health and Development.The episode aims to provide an understanding of the economy of wellbeing, highlight the limitations of relying solely on current economic tools, and stress the importance of diverse voices in decision-making regarding the economy. The discussion explores the intersection of health, inclusion, and prosperity.Hosted by Milka Sokolovic and Frazer Goodwin, this episode encourages viewers to recognise the significance of their voices in shaping a world where these elements are intertwined.Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on Twitter, the European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

The Rome Public Health Advocacy Manifesto represents a significant step forward in prioritizing public health on a global scale. Its focus on people, planet, evidence-based policy, partnerships, investment, and trust in science highlights the key areas that need urgent attention for a world in turmoil. In this episode, we discuss with those that helped develop the manifesto and very publicly signed it to find out what that they found new and important in it and what they personally committed to by putting their signature on the manifesto. Featured:Carlo Signorelli - President of ASPHERInes Siepmann - Coordinator of Young Professionals Programme, ASPHERAlice Chapman-Hatchett - President of EPHARobert Otok - Director of ASPHERSee here for more information on the text of the manifesto and how you too can commit to it and actions that will address its five objectives.Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on Twitter, the European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

In this episode, Milka is joined by Martin McKee – professor, researcher, and top European public health expert. Best known for his research on the health effects of the collapse of the Soviet bloc, European law and health policy, Martin has published over 1,000 papers in peer-reviewed journals, with his contributions highly valued and globally recognised.  As a society, we need to recognize that every political decision and law impacts our health, whether directly or indirectly. Martin therefore stresses the need for fundamental changes to political and economic systems, and the role that public health professionals and advocates can play in bringing about this change.Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on Twitter, The European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

Greg Martin is the Director of the Health Protection Surveillance Centre in Ireland and has a diverse background in global health. He trained as a doctor in South Africa and worked with organizations such as the WHO, UNITAID, and the Clinton Health Access Initiative. He now runs a Global Health YouTube channel with over 100K subscribers where he discusses threats and opportunities, including pandemic responses, antimicrobial resistance, and the impact of climate change. Greg emphasizes the importance of remembering marginalized populations and how focusing on their needs can benefit the entire system. Despite the challenges, he remains optimistic about the future of public health and highlights the role of advocacy in improving responses to these threats.Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe.Follow @EPHA_EU on Twitter, The European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.

Have you ever been to the pharmacy and couldn’t find the medicine you were looking for? Have you or your doctor struggled to find a medicine for you? Do you wonder why there are good new medicines for some diseases and no alternatives for others? In this episode, we delve into the revision of the EU's pharmaceutical framework and discuss its history and importance. Hosted by Frazer Goodwin, we sat down with Rosa Castro, EPHA's Senior Policy Manager for Healthcare Delivery, and someone that has been deeply involved in the discussions helping the Commission to prepare their proposal, including discussions with the European Medicine Agency. Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake. Follow EPHA’s podcast, whether you’re a policymaker, a health professional, or someone passionate about your own and others' health. Together, we advocate for better health in Europe. Follow @EPHA_EU on Twitter, The European Public Health Alliance on LinkedIn, or subscribe to our newsletters for regular updates.