Latest Episode8/10/2022
How charity Fifth Sense is offering Long Covid guidance, support, and hope for those with post-viral smell and taste loss
In the latest episode of our Covid Matters podcast, we spoke to Duncan Boak; founder and CEO of the smell and taste disorder charity Fifth Sense. We learned from Duncan how Fifth Sense is helping people whose sense of smell and/or taste has changed since having Covid-19. He also provided insights into the charity’s background and wider work, and explained some of the science of how a virus affects odour detection.Duncan shared his own story of losing his sense of smell following an accident where he sustained a head injury. Although it’s known that physical trauma to the head can damage smell or taste sensation, Duncan found that health professionals lacked knowledge about his condition, or about any treatment options that there were. He also found some people to be dismissive of his loss, downplaying the impact that it had upon various aspects of his life. His journey led to him setting up Fifth Sense in 2012, with the aim to provide support and advice for those affected by an absent – or reduced – sense of smell, and to educate people about the reality of living with those changes.In the podcast, Duncan highlights some of these challenges, learned from his own lived experiences as well as from the Fifth Sense community that he has helped to bring together. For example, losing what is, as Duncan points out, “one of the five ways in which we connect with the world around us” can reduce peoples’ enjoyment of food and drink, resulting in them eating less and consequently losing weight. This, in turn, can lead to inadequate nutrition. A changed relationship with food can impact mental health and social eating, and if a food or drink that brought particular pleasure now tastes unappetising, a grief process may be triggered. The lack of awareness of, and empathy for, the effects of not being able to smell can mean that those affected suffer in silence, feeling isolated and alone. For those with Long Covid, there are typically other symptoms that they are also having to contend with.Find tailored resources from Fifth Sense for this episode and more information here