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Autistic Culture Presents
Late Diagnosis Club: How Claire Stopped Believing ABA Was the Answer
In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Claire Samuels, a proud Autistic speech-language pathologist whose journey to self-recognition unfolded inside the very system she would later question.
Claire began her career as a Registered Behaviour Technician (RBT) in the ABA industry, believing what she was told: that ABA was the gold standard for Autistic children. She loved the kids she worked with and believed she was making a positive impact. But as she read autistic voices, learned about interoception, and began recognising her own sensory and regulatory differences, cracks in the framework began to show.
Together, Angela and Claire explore ABA, nuance, Autistic self-recognition, masking, sensory processing, burnout, and what it means to move from compliance-based therapy to connection-based communication.
This episode is about shifting lenses, from behaviour to nervous systems, from control to connection, and from moral judgment to regulation.
šŖ Attendees
Chair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocate
Guest: Claire Samuels ā Autistic speech-language pathologist
You: The Listener!
šļø Meeting Agenda
- Opening remarks from the Chair
- Member introduction: Theatre kid, masking, and early sensory differences
- Discussion: Entering ABA and believing the gold standard
- Interoception, meltdown empathy, and late self-recognition
- Leaving ABA and shifting from behaviour to environment
- Becoming an SLP: AAC, connection, and child-led therapy
- Key learnings
- Club announcements
š§¾ Minutes from the Meeting
1ļøā£ Opening Remarks
Angela introduces Claire as a clinician whose story offers a rare inside perspective on ABA. Someone who entered the field with good intentions and left with a deeper understanding of Autistic nervous systems and lived experience.
2ļøā£ Member Introduction: Claireās Story
Claire describes herself as a āchameleonā in school, a theatre kid who learned to play the role of ānormalā while privately embracing her oddities. She studied psychology to understand how people āpeople,ā navigated burnout in college, and found improv as a regulatory outlet.
After serving in the Peace Corps in The Gambia, she returned to the USA, unsure of her path, but drawn to working with neurodivergent children. A friend introduced her to ABA, promising meaningful work, strong income potential, and the opportunity to work in the āgold standardā of Autism treatment.
3ļøā£ Discussion Highlights
- ABA immersion: 40-hour weeks for toddlers and gold-standard messaging
- RBT reality: Minimal training, low pay, no autism coursework required
- Demand maintenance: Repeating instructions during meltdowns until compliance
- Interoception moment: Supervisor unfamiliar with the concept
- Masking realisation: Social media and autistic adult narratives
- Pendulum swing: From āgold standardā to āABA is abuseā to nuance
- SLP path: Language, connection, AAC, and feature matching
- Child-led therapy: Slower but healthier device relationships
- Self-accommodation: Headphones, fidgets, and nervous system resets
- Autistic joy: Sesame Street, stimming, and public authenticity
4ļøā£ Key Learnings
- Behaviour is not the whole story
- Good people can work inside broken systems
- Language and connection are cyclical
- Autistic regulation is not a moral failure
- Self-accommodation changes relationships
- Labels serve us ā not the other way around
š Notice Board
- Loud Hands: Autistic People, Speaking
- Autistic Self-Advocacy Network
- Autism Society of Washington
- Thurston County Inclusion
- Therapeutic BeginningsĀ
š£ Club Announcements
š§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.
š¬ Join our online meetups and community atĀ latediagnosis.club.
š Check theĀ LDC Notice BoardĀ for Member Contributions
š There is a small charge ā but no one is turned away for lack of funds.
š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.com
š VisitĀ www.autisticculturepodcast.com
š² Follow us on Instagram:Ā @autisticculturepodcast
šļø Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.
š§ Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas FlĆøde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, Nicola Owen, Rebecka Johansson, Sam Morris, Sarah Hannah Morris.
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24. Late Diagnosis Club: How Michael Discovered He Was Autistic After Years of Anxiety Misdiagnosis
44:33||Ep. 24In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Michael Kelly, a late-diagnosed Autistic artist and recent PhD graduate in design whose work explores how art can help us think about thinking.Michaelās path to diagnosis began unexpectedly during his wife Susieās autism assessment. After sitting in on several sessions as her carer, the clinician suggested that Michael pursue an assessment as well, leading to his own diagnosis a year later.Together, Angela and Michael explore childhood solitude and special interests, creative practice as a way of understanding the mind, and how art can disrupt the systems that shape our thinking.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Michael Kelly ā Autistic artist, designer, and researcherYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Growing up as the āweird kidā and finding refuge in books and ideasDiscussion: Philosophy, art practice, and early adult burnoutPsychosis, misdiagnosis, and years labelled as anxietyAutistic masking, sensory overwhelm, and family patternsArt as inquiry: performance, sculpture, and metacognitionArtificial intelligence, normativity, and the role of artistsKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela introduces Michael Kelly, a late-diagnosed Autistic artist and newly minted PhD graduate whose research explores how art can help us understand thinking itself, particularly in the context of emerging technologies and artificial intelligence.2ļøā£ Member Introduction: Michaelās StoryMichael describes growing up as āthe weird kid,ā finding comfort in solitary interests like books, dinosaurs, comics, and drawing. As an only child, he often retreated into imagination and reflection. Experiences that, in hindsight, align with Autistic ways of engaging with the world.After studying philosophy at Durham University in the UK, Michael pursued creative work and eventually a career in advertising before experiencing severe burnout and psychosis in his mid-20s. For years afterwards, he lived under an anxiety diagnosis without understanding the deeper neurodivergent context behind his experiences.3ļøā£ Discussion HighlightsOnly-child solitude: Safe space for imagination, reading, and deep thinkingEarly interests: Dinosaurs, comics, drawing, theology, and philosophyAdvertising burnout: Workplace pressure and sensory overload leading to psychosisMisdiagnosis: Years labelled with anxiety before autism was consideredPartner recognition: Sitting in on Susieās autism assessment sparked Michaelās ownMasking and sensory overwhelm: Eye contact, social performance, and inherited patternsArt as inquiry: Performance art, sculpture, and artistic experiments exploring the mindMetacognition: Using art to examine how humans think about thinkingAI and normativity: Concerns about artificial intelligence reinforcing āaverageā thinking4ļøā£ Key LearningsLate discovery often begins with recognition by someone close to us.Years of anxiety or other diagnoses can obscure underlying neurodivergence.Creative practice can become a powerful tool for understanding internal experience.Masking and sensory overwhelm often shape lifelong coping strategies.Artists may play an important role in questioning the systems and technologies shaping our future.š Notice BoardMichaelās Websiteš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
23. Late Diagnosis Club: How Tigz Realised She Was Autistic After a Lifetime of Creative Hyperfocus
54:18||Ep. 23In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Tigz Rice, an empowerment photographer whose work centres on helping people feel truly seen in their own bodies.Diagnosed with ADHD and autism in her late 30s, Tigz reflects on the subtle signs that were present throughout childhood ā from early hyperfocus on computers and photography to lifelong curiosity about how things work. What began as a casual exploration of ADHD eventually led to a dual diagnosis that reframed decades of experience and self-understanding.Together, Angela and Tigz explore late discovery, high masking, creative hyperfocus, and how learning her neurodivergent āuser manualā has changed how she treats herself.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Tigz Rice ā Empowerment photographer, podcaster, and late-identified Autistic ADHDerYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Creativity, photography, and late neurodivergent discoveryDiscussion: ADHD first, autism later, and the long path to diagnosisHyperfocus, masking, and childhood signsCreative communities, burlesque, and neurodivergent overlapLearning self-compassion after diagnosisKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela welcomes listeners to the meeting and introduces photographer Tigz Rice, whose work focuses on helping people feel comfortable being seen in their bodies. Through photography, Tigz creates spaces where authenticity and vulnerability are welcomed rather than hidden.2ļøā£ Member Introduction: Tigzās StoryTigz did not suspect she was neurodivergent until her 30s. The idea first emerged when several friends in her social circle began receiving ADHD and autism diagnoses.What began as curiosity became a deeper investigation. Her ADHD diagnosis arrived first, followed by an autism diagnosis only a few months later at age 38. Rather than shock or shame, the experience felt largely validating ā like finally gaining access to the āuser manualā for her brain.3ļøā£ Discussion HighlightsFriendship pattern: Entire social circle gradually discovering neurodivergenceADHD pathway: Diagnosis first revealed lifelong dopamine-seeking and shifting interestsAutism clarity: ADHD medication made Autistic traits more visibleChildhood signs: Fascination with computers, photography, and how systems workCreative hyperfocus: Photoshop, illustration, and photography as enduring interestsPerformance worlds: Theatre and burlesque communities with strong neurodivergent presenceMasking awareness: Realising later how much effort social performance requiredAutistic glimmers: Full-body sensory moments of joy and alignmentSelf-compassion: Learning to honour limits and support her own needs4ļøā£ Key LearningsLate diagnosis can bring validation rather than crisis.ADHD and autism can mask each other until one becomes clearer.Creative communities often offer safer spaces for neurodivergent expression.Understanding your neurodivergence can lead to greater self-compassion.Trusting your intuition and pattern recognition can guide self-discovery.š Notice BoardTigz WebsiteTigz PodcastIf anyone wants to be photographed by Tigz, you can find the details at https://www.tigzrice.comš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
22. Late Diagnosis Club: How Jenna Left Public Schools After Discovering She Was Autistic
48:53||Ep. 22In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Jenna Goldstein, a late-diagnosed Autistic school psychologist who left the public education system after recognising its incompatibility with neurodiversity-affirming practice.Jenna first recognised her own autism after her three-year-old daughter was identified. As she turned to Autistic voices for understanding, what began as advocacy for her child became a deeper self-recognition. Within months, she self-identified, and years later sought a formal diagnosis from an Autistic evaluator to connect more dots and model an Autistic identity for her children.This is a conversation about human rights, blueprint-building, leaving systems that harm, and crafting lives that actually work for autistic nervous systems.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Jenna Goldstein ā late-diagnosed Autistic school psychologist; founder of ND3You: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Daughterās diagnosis and late self-recognitionDiscussion: School psychology training and harmful autism narrativesUnspoken agendas: Budgets, bias, and gatekeeping in public schoolsāDevelopmental delayā and the myth of the model childLeaving public schools and building ND3Neurodiversity-affirming family supportDesigning sustainable neurodivergent homesš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela introduces Jenna as a late-diagnosed Autistic school psychologist who recognised her own neurodivergence through parenting, and who ultimately left the public school system after concluding it was structurally incompatible with neurodiversity-affirming values.2ļøā£ Member Introduction: Jennaās StoryJenna first encountered autism when her three-year-old daughter was identified. Dissatisfied with deficit-based descriptions, she sought understanding directly from Autistic adults. As she read first hand accounts, she recognised herself.She self-identified within six months and later pursued a formal diagnosis with autism, not out of doubt, but to deepen understanding and model Autistic identity for her children.3ļøā£ Discussion HighlightsAutistic recognition: Learning from Autistic voices instead of textbooksMedical model critique: Rejecting ādefective humanā narrativesUnspoken pressures: Budget constraints influencing eligibility decisionsGatekeeping language: āDevelopmental delayā as catch-all categorySystem limits: Realising change from within has ceilingsPrivate practice shift: Leaving public schools for ND3Human rights lens: Equal dignity for neurodivergent childrenFamily sustainability: Peaks, valleys, flexibility, and regulation planningBlueprint building: Co-creating neurodivergent life models4ļøā£ Key LearningsListening to autistic voices changes everythingTraining does not guarantee understandingSystems can be well-intentioned and still harmfulBudget pressures quietly shape access to supportNeutral framing reduces shame and blameAutistic pride is pride in humanity, not productivityNot all systems can be changed from withinSustainable lives require intentional designYou are allowed to leave what harms youš Notice BoardND3 InstagramND3 Websiteš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
21. Late Diagnosis Club: How Amy Built a New School After Discovering She Was Autistic
49:06||Ep. 21In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Amy Kriewaldt, a late-diagnosed Autistic, ADHD, and PDA mother of three neurodivergent children.Amy grew up a hyperlexic piano prodigy, praised for talent and performance while quietly navigating sensory overwhelm, situational mutism, perfectionism, and crushing internal expectations. It wasnāt until her children began receiving diagnoses that she started to recognise herself in their traits, and ultimately heard the words that changed everything: āOh, I think youāre Autistic.āTogether, Angela and Amy explore hyperlexia, auditory processing differences, late self-recognition, self-compassion, memoir writing as a reframing, ADHD medication, self-medication through alcohol and caffeine, and the shift from compliance-based education to connection-centred learning.This is a conversation about reframing failure, advocating fiercely, rewriting your past, and building systems that support autistic people across the lifespan.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Amy Kriewaldt ā late-diagnosed Autistic, ADHD, and PDA advocate; founder of Creewald AcademyYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Prodigy pressure, hyperlexia, and sensory overwhelmDiscussion: Parenting autistic children and recognising yourselfAuditory processing, situational mutism, and late diagnosisADHD, self-medication, and relief through treatmentRewriting childhood through memoir and self-compassionRestraint policies, advocacy, and saying ānoāš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela introduces Amy as a late-diagnosed Autistic and ADHD parent navigating life with three neurodivergent children ā all PDA ā and building alternatives where traditional systems fall short.2ļøā£ Member Introduction: Amyās StoryAmy describes growing up as the youngest of eight children and a piano prodigy ā hyperlexic, musically analytical, and praised for performance. Behind the talent were sensory overload, situational mutism, intense perfectionism, and chronic overwhelm that went unrecognised.As her children received diagnoses, Amy began to see familiar patterns: auditory processing differences, sensory avoidance, social anxiety, and shutdown.During a phone call describing how she processes information ā needing complete silence to think ā her psychologist paused and said, āOh. I think youāre autistic.ā3ļøā£ Discussion HighlightsProdigy pressure: Performance, perfectionism, and masking through musicParenting mirror: Recognising autistic traits through her childrenAuditory processing: Needing silence to think and workADHD realisation: Chronic lateness, executive dysfunction, and relief through medicationSelf-medication cycle: Alcohol, caffeine, and nervous system swingsIEP advocacy: āIt doesnāt need fixing. It needs supporting.āRestraint refusal: Saying no to compliance-based control4ļøā£ Key LearningsDiagnosis can transform shame into self-compassionFailure often reflects unmet needs, not broken characterSupport changes everythingAdvocacy sometimes begins with āNoāCompliance is not the same as learningChildren thrive when autonomy is honouredRewriting your past can reprogram your futureYou are not a moral failure for having limitsš Notice BoardAmy Kriewaldt InstagramKriewaldt Academy InstagramPDA USAš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
19. Late Diagnosis Club: How Julie Discovered Her Autism Through Burnout and Books
59:58||Ep. 19In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Julie Farrell, a late-diagnosed Autistic and ADHD writer, activist, and co-founder of The Inklusion Guide, a resource dedicated to making literature events accessible to disabled people.Julie shares her slow, layered journey toward understanding her neurodivergence ā from burnout, migraines, and chronic illness labels, to finding herself mirrored in Autistic writers like Katherine May, to sobbing through the documentary Seeing the Unseen and finally knowing in her bones.Together, Angela and Julie explore masking, shutdowns mislabelled as anxiety, CPTSD, creative identity, freelance work as nervous system regulation, and the relief of receiving a diagnosis in a supportive, affirming environment. They also talk about ADHD medication, menstrual cycle titration, EMDR therapy, and what it feels like to āprecipitate out of the hot gooā and become solid for the first time.This episode is also about Autistic joy ā about stars, navigation, grief, and how Julieās late father taught her to look up at the night sky and find her way.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Julie Farrell ā Writer, activist, and late-diagnosed Autistic & ADHD womanYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Burnout, writing communities, and slow recognitionDiscussion: Masking, shutdowns, and anxiety misdiagnosisChronic illness labels, brain fog, and nervous system overwhelmSelf-identification, late ADHD discovery and medicationCreativity, rejection sensitivity, and publishing Someone Like MeKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela introduces Julie as a writer whose work reclaims Autistic narrative and centres accessibility, creativity, and late discovery. The conversation begins with the power of anthologies ā reading other Autistic womenās work and realising, āOh. That wasnāt just me.ā2ļøā£ Member Introduction: Julieās StoryJulie traces her recognition back to 2018, when she ran a co-writing group in Edinburgh and befriended an openly Autistic man who spoke about burnout cycles. At the time, she didnāt see herself in autism ā she was high masking and had internalized generalized anxiety and fibromyalgia diagnoses.Reading Wintering by Catherine May and later reviewing the documentary Seeing the Unseen became turning points. She describes sobbing at the end of the film and knowing, finally, that she was Autistic.3ļøā£ Discussion HighlightsMasking & shutdowns: Nonverbal shutdowns misinterpreted as panic attacksMisdiagnosis: Anxiety and fibromyalgia concealing Autistic burnoutBurnout at 30: Months unable to leave the sofa; repeated medical dismissalSelf-ID vs formal diagnosis: The emotional weight of bothBeing believed: āAre you telling me Iām not stupid?āADHD discovery: Hyperactivity, career misalignment, and paid assessmentMedication: Titration and menstrual cycle adjustmentsPublishing: Invited to contribute to Someone Like MeGrief & stars: Writing about her father, navigation, and expansive belonging4ļøā£ Key LearningsBurnout cycles can be mistaken for anxietyMasking can delay self-recognition for yearsDiagnosis can dissolve lifelong shameMedication can reshape creative capacityFreelance work can be nervous system careAutistic joy often lives in special interestsš Notice BoardInkulsion GuideSomeone Like Me AnthologyJulieās Website Wintering by Katherine Mayš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
18. Late Diagnosis Club: How Helen Learned She Was Autistic After a Lifetime of Misdiagnosis
53:09||Ep. 18In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Helen Shaddock, a multidisciplinary artist, writer, and PhD researcher whose work explores autism, eating distress, OCD, and healing through creativity.Helen was diagnosed with anorexia at 13 and spent the next 25 years moving through eating-disorder pathways that never fully explained her experience. It wasnāt until her late 30s ā after years of treatment, physical injury, and burnout ā that an occupational therapist recognised what others had missed: Helen was Autistic.Helen and Angela explore the long overlap between eating distress, OCD, and autism, how Autistic regulation was repeatedly misread as pathology, and how late diagnosis reframed decades of self-blame. Helen shares her experiences around interoception, stimming, routine, sensory regulation, and the difference between Autistic eating and eating disorder treatment.This episode is also about creative becoming ā how art, writing, and storytelling can be tools for survival, meaning-making, and identity reconstruction.Ā šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Helen Shaddock ā Autistic multidisciplinary artist, writer, and PhD researcherYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Autism missed across treatment pathwaysCBT, clinical harm, and misinterpretation of Autistic regulationAutistic eating vs eating disorder frameworksBurnout, grief, and late autism recognitionCreative becoming through art and storytellingKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela welcomes Helen as a long-standing member of the LDC community and frames the conversation around storytelling, creativity, and late recognition. This meeting emphasises intimacy and pacing ā meeting one another āone at a time,ā in a way that feels distinctly Autistic.2ļøā£ Member Introduction: Helenās StoryHelen was diagnosed with anorexia at 13 and spent her adolescence and adulthood navigating eating-disorder treatment, CBT, and medical surveillance.Many Autistic traits, including routine, stimming, sensory sensitivity, and the need for predictability, were interpreted as pathology rather than regulation.She experienced chronic fatigue in early adolescence, missed significant periods of school, and was bullied. Later injuries, stress fractures, and physical complications were consistently attributed to anorexia, obscuring the role of autism and interoceptive differences.3ļøā£ Discussion Highlights25 years missed: Autism identified at 38 after decades of eating-disorder treatmentMisinterpretation: Autistic stimming and regulation framed as calorie-burning or compulsionInteroception: Pain, hunger, and bladder signals go unnoticed until extremeRoutine & safety: The difference between Autistic eating and eating distressGrief: Mourning the support that could have existed earlierLanguage shift: Choosing āeating distressā over āeating disorderāCreative becoming: Identity as fluid, evolving, and reconstructed through artArtEd: Digital storytelling, visual diaries, and community zines4ļøā£ Key LearningsEating distress can mask autism ā and vice versaLate diagnosis can dissolve decades of self-blameAutistic regulation is often misunderstood as a disorderCreativity is not a luxury ā it is a survival toolCommunity reduces isolation and restores dignityš Notice BoardArtED WebsiteHelenās Websiteš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
17. Late Diagnosis Club: How Tara Survived Without Knowing She Was Autistic
01:06:56||Ep. 17In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Tara for one of the most difficult and important conversations the Club has held.ā ļø Content notice: This episode includes discussion of violence, sexual abuse, child harm, and coercive control. Listener discretion is strongly advised. Please pause or skip as needed and take care of yourself.Tara is a late-diagnosed Autistic woman, a mother, and a survivor of severe childhood abuse, abduction, and exploitation. She shares her story not for shock, but to illuminate how Autistic girls and women are uniquely vulnerable ā especially when they grow up without protection, language, or recognition of their neurodivergence.Together, Angela and Tara explore survival as an Autistic trait, truth-telling as both a strength and a liability, vulnerability to cults and exploitative systems, and the long road to healing through prolonged exposure therapy. Taraās story is harrowing ā but it is also a testament to resilience, instinct, and the life-saving power of being believed.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Tara ā late-diagnosed Autistic woman, mother, and survivorYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Abuse, abduction, and survivalDiscussion: Autistic vulnerability and coercive control, misdiagnosis, and being labelled a liarCults, self-help movements, and exploitationProlonged exposure therapy and Late autism self-recognitionKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela opens the meeting with a clear trigger warning and an explanation of the safeguards taken to ensure this conversation was shared safely and consensually. This episode is framed as difficult ā but necessary ā for Autistic people, particularly women and girls, whose experiences of abuse are often misunderstood or erased.2ļøā£ Member Introduction: Taraās StoryTara describes knowing she was different from early childhood ā hyperlexic, highly intelligent, sensory-sensitive, and deeply compliant. As a CODA, she was placed in adult responsibilities far too young, acting as her motherās ears while navigating an unsafe home environment.Family members responded to her Autistic traits with punishment and violence rather than protection. Tara was repeatedly locked away, beaten, and labelled with slurs ā experiences that primed her for later exploitation.At 14, Tara was abducted by adults known to her family. She was held, tortured, and left for dead. No search party was launched. No justice followed. Tara survived through instinct, dissociation, and an extraordinary will to live.3ļøā£ Discussion HighlightsAutistic vulnerability: How isolation, compliance, and literal trust increase riskSurvival instincts: Autism as a tool for endurance and escapeMisdiagnosis: Repeatedly labelled with personality disordersCults and self-help: Seeking safety and meaning in exploitative systemsProlonged exposure therapy: Ten years of structured trauma processingLate autism recognition: Finding language after decades of harmMotherhood: Love, rupture, and intergenerational neurodivergenceJustice: Living without it ā and learning how to go on4ļøā£ Key LearningsAutistic girls are especially vulnerable when their differences go unprotectedBeing articulate does not prevent exploitationTruth-telling can be punished in unsafe systemsMisdiagnosis can cause as much harm as no diagnosisSelf-diagnosis can be life-savingš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast
16. Late Diagnosis Club: How Abbey Realised She Was Autistic After Decades of Masking
50:49||Ep. 16In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Abbey Thompson ā a librarian, classically trained vocalist, prize-winning baker, gamer, social justice bard, and self-described random fact machine.Abbey is a fat, queer, neurodivergent woman living in Los Angeles with two orange cats and a deep commitment to creativity without perfection.Diagnosed with ADHD in her 40s and later recognising she was also Autistic, Abbey describes how finally naming her neurodivergence didnāt just bring understanding ā it brought permission. Permission to be loud, to be big, to be joyful, to be mediocre, and to exist without apology.Together, Angela and Abbey explore late identification, fatness and bullying, perfectionism, burnout, AuDHD, creativity as regulation, and the radical act of letting go of shame. This episode is an invitation to stop fixing yourself ā and start living.šŖ AttendeesChair: Dr Angela Kingdon ā Author, community-builder, and Autistic advocateGuest: Abbey Thompson ā AuDHD librarian, vocalist, baker, and creator of the Mediocre Arts and Crafts ClubYou: The Listener!šļø Meeting AgendaOpening remarks from the ChairMember introduction: Masking, bullying, and being ātoo muchāDiscussion: Late diagnosis, burnout, friendship, fatness, queerness, and shameSensory processing, burnout, animals, justice sensitivity, and belongingKey learningsClub announcementsš§¾ Minutes from the Meeting1ļøā£ Opening RemarksAngela introduces Abbey as someone whose life defies neat categories ā librarian, opera singer, baker, gamer, and cat enthusiast ā all in one person. From the outset, this conversation sets aside productivity and leans into permission: to be multifaceted, messy, and fully yourself.2ļøā£ Member Introduction: Abbeyās StoryAbbey describes growing up as a high-achieving, compliant student who internalised bullying and othering ā largely attributing friendship difficulties to being fat in a culture that relentlessly punished difference.Early signs of neurodivergence, including hyperfocus, rigidity, gullibility, sensory sensitivity, and being ātoo loud,ā were reframed for decades as personal flaws. Only later did Abbey come to understand these traits through an Autistic and ADHD lens ā one that offered compassion instead of criticism.3ļøā£ Discussion HighlightsLate diagnosis: ADHD and autism identified in Abbeyās 40sBurnout: Years of overachievement, graduate school, and unrecognised exhaustionMasking: Being capable on the outside while struggling internallyFatness & bullying: How body stigma obscured neurodivergenceCreativity as regulation: Singing, baking, crafting, and making for joyMediocre Arts and Crafts Club: Creating without perfection or monetisationShame: Letting go of self-policing and internalised judgmentCommunity: Belonging as protection and healing4ļøā£ Key LearningsCompetence can hide profound struggleShame is not a motivator ā itās a barrierCreativity doesnāt need to be perfect to be meaningfulLate diagnosis can offer forgiveness, not just answersCommunity helps return shame to where it belongsYou donāt need permission to exist ā but it helps when you finally give it to yourselfš Notice BoardAbbeyās InstagramMediocre Arts & Crafts Clubš£ Club Announcementsš§Ā The Late Diagnosis ClubĀ is available onĀ Spotify,Ā Apple Podcasts, and all major platforms.š¬ Join our online meetups and community atĀ latediagnosis.club.š Check theĀ LDC Notice BoardĀ for Member Contributionsš There is a small charge ā but no one is turned away for lack of funds.š Celebrate autistic voices with early access, ad-free listening, and our full archive atĀ AutisticCulturePlus.comš VisitĀ www.autisticculturepodcast.comš² Follow us on Instagram:Ā @autisticculturepodcast