Ask The Patient Advocate

Have you ever felt overwhelmed trying to coordinate appointments with multiple specialists?Have you ever left a medical visit with more questions than answers?Or wondered who can help you navigate the increasingly complex world of healthcare?In today’s healthcare landscape, patients are facing more information, more specialists, and more complicated treatment decisions than ever before. While medical advancements have improved care in many ways, they’ve also made the system harder to navigate — leaving many patients and families feeling confused, stressed, and unsupported.In this episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli and Christine explore the evolving role of private patient advocacy and why it’s becoming an essential part of modern healthcare.In this conversation, you’ll learn:• The key difference between general patient advocates and private patient advocates• Why healthcare complexity is increasing — and what that means for patients• How private advocates provide personalized, one-on-one support throughout the healthcare journey• The many ways advocates help coordinate care, prepare for appointments, and organize medical records• How advocacy has evolved beyond hospital stays to include proactive, ongoing support• Why experience and insight are critical when navigating complex diagnoses, treatments, and second opinionsIf you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Take control of your healthcare journey with confidence.✨ Enroll today in our Patient Advocacy Course and learn how to speak up, stay organized, and make informed decisions about your care or your loved one’s.👉 Visit https://pathwaypa.com/pathwaycourses/ to get started.Connect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com

Have you ever taken a medication that made you feel worse instead of better?Have you been told your symptoms were anxiety… when your body was clearly in crisis?Have you felt changed — even traumatized — by the very system meant to help you heal?In this episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli sits down with licensed therapist and coach Chris Page, LCSW, to unpack a topic that is rarely discussed openly: medical and iatrogenic trauma.With over 35 years of experience — and powerful lived experience as a survivor of pharmaceutical injury — Chris speaks not just as a clinician, but as what he calls a “wounded healer.”Together, they explore what happens when treatment causes harm… and why so many patients are misdiagnosed, dismissed, or caught in a dangerous cycle of worsening symptoms.In this episode, you’ll learn:• What iatrogenic injury really means — and why it’s often overlooked• How medication side effects can mimic psychiatric illness and lead to misdiagnosis• What akathisia is — and why it can be life-threatening yet misunderstood• Why medical trauma can erode trust and social support• How early life trauma and nervous system dysregulation show up as chronic physical illness• The difference between “top-down” talk therapy and “bottom-up” somatic healing• Why hope and neuroplasticity are central to recoveryChris shares his harrowing experience of surviving chronic akathisia for over three years — pacing 12–14 hours a day, battling intense suicidal ideation, and navigating a medical system that didn’t recognize his crisis.But this episode is not just about suffering.It’s about survival.It’s about nervous system healing.It’s about understanding that symptoms often make sense — even when they’re misunderstood.And most importantly, it’s about hope.If you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395.Connect with Chris Paige:https://www.chrispaigelcsw.com/https://www.facebook.com/profile.php?id=100063867851444#https://www.instagram.com/frehley13Connect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com

Have you ever left a doctor’s appointment thinking of the questions you wish you had asked?Have you ever felt unsure about speaking up in a medical setting?Or wondered how much your voice actually matters in your own healthcare decisions?In this episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli and Christine dive into one of the most powerful yet often overlooked tools in healthcare: self-advocacy.For many patients, navigating the healthcare system can feel overwhelming. Appointments are short. Medical language can be confusing. And when you’re already dealing with illness, stress, or uncertainty, finding the confidence to ask questions or challenge unclear information can feel incredibly difficult.But self-advocacy isn’t about being confrontational or questioning every medical decision. It’s about partnership.Together, they explore:• What self-advocacy really means in a healthcare setting• Why does it play such a critical role in patient outcomes• The common barriers that prevent patients from speaking up• How asking the right questions can prevent misunderstandings and medical errors• Why feeling intimidated or overwhelmed in appointments is completely normal• Practical ways to prepare for appointments and communicate more confidentlyIf you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Take control of your healthcare journey with confidence.✨ Enroll today in our Patient Advocacy Course and learn how to speak up, stay organized, and make informed decisions about your care or your loved one’s.👉 Visit https://pathwaypa.com/pathwaycourses/ to get started.Connect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com

Have you ever been told your symptoms were “normal”… when they didn’t feel normal at all?Have you ever left a doctor’s appointment feeling dismissed, unheard, or defeated?What if your pain wasn’t in your head — but simply misunderstood?March is Endometriosis Awareness Month. This episode is dedicated to all women battling endometriosis. In this powerful episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli sits down with Gigi Robinson — endometriosis warrior, Ehlers-Danlos syndrome (EDS) advocate, author, speaker, and digital creator — to talk about chronic illness, self-advocacy, and turning lived experience into impact.Gigi’s journey began in adolescence after repeated injuries led to a diagnosis of hypermobile EDS. But that was only the beginning. After more than a decade of searching for answers, countless tests, and years of debilitating symptoms, she was finally diagnosed with endometriosis in 2022 — a diagnosis that changed her life.In this conversation, Gigi shares:• What it’s like to grow up with an invisible illness• The frustration of normal test results when you know something is wrong• How a simple blood test revealed a missed diagnosis that years of procedures did not• Why symptom tracking and specificity are critical in the diagnostic process• The mindset shift that helped her move from surviving to advocating• The challenges of navigating chronic illness in the workplace — and how to request meaningful accommodations• Why she wrote A Kids Book About Chronic Illness and why resilience starts earlyIf you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Connect with Gigi Robinson:https://www.gigirobinson.com/https://www.facebook.com/itsgigirobinsonhttps://www.instagram.com/itsgigirobinson/https://www.tiktok.com/@itsgigirobinsonhttps://www.linkedin.com/in/gigirobinsonhttps://www.threads.com/@itsgigirobinsonhttps://www.youtube.com/c/GigiRobinson/featuredConnect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com

What if the answers you need aren’t available locally?What if genetic testing could open doors to treatments you didn’t know existed?What if one second opinion could change everything?In this episode of Ask the Patient Advocate, Dr. Elena Borrelli shares the story that forever changed her life — walking beside her brother during his seven-year journey with cholangiocarcinoma (bile duct cancer).In honor of Cholangiocarcinoma Awareness Month, Dr. Borrelli and Christine discuss what patients and families need to know about this rare and often overwhelming diagnosis. From the challenges of late detection to the powerful advancements in precision medicine, this conversation brings clarity to a complex disease.You’ll learn:What cholangiocarcinoma is and why it’s often diagnosed lateHow molecular and genetic testing (FGFR2, IDH1, BRAF, HER2 and more) are transforming treatment optionsWhy early testing can dramatically expand access to targeted therapies and immunotherapyThe critical role of second opinions and specialty centersHow clinical trials may provide access to cutting-edge treatmentsWhy private patient advocacy can be life-changing in rare cancer careIf you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Take control of your healthcare journey with confidence.✨ Enroll today in our Patient Advocacy Course and learn how to speak up, stay organized, and make informed decisions about your care or your loved one’s.👉 Visit https://pathwaypa.com/pathwaycourses/ to get started.Connect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com

Have you ever felt invisible in your illness?Ever been told your symptoms were anxiety… exaggeration… or “just stress”?Have you wondered why some stories of illness are believed, while others are dismissed?In this powerful episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli sits down with award-winning author, professor, and patient advocate Laurie Edwards — a leading voice in chronic illness storytelling and public health.Long before chronic illness was widely discussed on social media, Laurie was writing about it. Through her groundbreaking books Life Disrupted and In the Kingdom of the Sick, and her essays in outlets like The New York Times, NPR, and The Boston Globe, she has helped shape the national conversation around what it really means to live with chronic disease.But Laurie doesn’t just write about chronic illness. She lives it.In this conversation, we explore:Why storytelling is one of the most powerful tools in patient advocacyHow chronic illness activism has shaped medical breakthroughs and civil rightsThe impact of Long COVID on public awareness of chronic conditionsWhy women’s pain is still more likely to be dismissed — and the dangerous consequences of that biasThe unique challenges young adults with chronic illness face in education, relationships, and careersHow “writing to heal” can help patients process trauma, reclaim their narrative, and advocate more effectivelyIf you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395Connect with Laure Edwards:https://www.laurieedwardswriter.com/https://www.facebook.com/laurieedwardswriterwww.linkedin.com/pub/laurie-edwards/1/9a5/849Connect with Dr. Elena Borrelli:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocatespathwaypa.com