AS Info Share

Biologics: life-changing medicine or something to fear?And can a specific diet really 'cure' an autoimmune condition?On this episode, we’re cutting through the noise.AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds.You don’t want to miss this.----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------ASIF - Axial Spondyloarthritis International Federation http://www.asif.infoCanadian Spondyloarthritis Association http://www.sparthritis.caNASS - National Axial Spondyloarthritis Societyhttp://www.actonaxialspa.comSpondylitis Association of Americahttp://www.spondylitis.comASAS - Assessment of Spondyloarthritis International Federationhttp://www.asas-group.orgEULAR - European Alliance of Associations for Rheumatologyhttp://www.eular.orgACR - American College of Rheumatologyhttp://www.rheumatology.orgSPARTAN - Spondylarthritis Treatment and Training Networkhttps://spartangroup.org/Axial Spondyloarthritis Resourceshttps://www.facebook.com/profile.php?id=100089425921229PubMedhttps://pubmed.ncbi.nlm.nih.gov/Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023https://amzn.to/3NnXbKW----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

Stop Feeling Dismissed: How to Advocate for Your AxSpA CareHave you ever walked out of a doctor’s office feeling unheard? In this episode of AS Info Share, we continue our deep-dive interview with patient advocate Michael Mallinson. We’re tackling the "doctor-patient" dynamic head-on, discussing how to handle clinical dismissal and providing you with the tools to become a more educated, confident advocate for your own health.In this episode, you’ll learn:What to do when a medical professional minimizes your symptoms.How to bridge the communication gap with your healthcare team.Practical steps to transition from "patient" to "empowered advocate."----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------WORLD AS DAYhttps://asif.info/worldasday/WALK YOU AS OFFhttps://spondylitis.raiselysite.com/ASIF - Axial Spondyloarthritis International Federation http://www.asif.infoCanadian Spondyloarthritis Association http://www.sparthritis.caNASS - National Axial Spondyloarthritis Societyhttp://www.actonaxialspa.comSpondylitis Association of Americahttp://www.spondylitis.comASAS - Assessment of Spondyloarthritis International Federationhttp://www.asas-group.orgEULAR - European Alliance of Associations for Rheumatologyhttp://www.eular.orgACR - American College of Rheumatologyhttp://www.rheumatology.orgSPARTAN - Spondylarthritis Treatment and Training Networkhttps://spartangroup.org/Axial Spondyloarthritis Resourceshttps://www.facebook.com/profile.php?id=100089425921229PubMedhttps://pubmed.ncbi.nlm.nih.gov/Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023https://amzn.to/3NnXbKW----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

In this episode of AS Info Share, we sit down with patient advocate Michael Mallinson to discuss an important event for the Axial Spondyloarthritis (AxSpA) community—World AS Day. Observed each year on the first Saturday in May, this global awareness day brings together patients, advocates, and organizations to raise awareness, promote education, and support those living with Axial Spondyloarthritis, formerly known as Ankylosing Spondylitis. Michael shares insights about the significance of the day, why the name of the condition has evolved, and how events like Walk Your A.S. Off Day help build community and encourage advocacy.Because Michael shared so much valuable information, we’ve decided to split our conversation into multiple episodes, each focusing on different aspects of living with and advocating for those with Axial Spondyloarthritis. In this installment, we focus on awareness and the importance of the global AS community coming together. Be sure to tune in to upcoming episodes as we continue the discussion, covering topics such as patient education, advocating for yourself when dealing with dismissive healthcare providers, mental health support, and the unique challenges women face in getting diagnosed and treated.Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.https://asif.info/worldasday/https://asif.info/https://spondylitis.raiselysite.com/----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

Curious about cannabis for Axial Spondyloarthritis / Ankylosing Spondylitis? In this episode, we break down what THC and CBD can and can’t do for pain, inflammation, and sleep. We compare them to standard AS treatments and explore the latest research. Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

Living with Axial Spondyloarthritis / Ankylosing Spondylitis (AS) often means living with relentless fatigue. In this episode of AS Info Share, we dive into what causes that deep exhaustion from chronic inflammation and pain, to poor sleep and mental health struggles. You'll learn possible strategies to reduce fatigue, improve sleep, and boost your energy. We also explore helpful tools and sleep aids that can make a real difference. Whether you’re newly diagnosed or managing AS for years, this episode offers practical insights and support you can use today.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV☕ Support Our Workhttps://buymeacoffee.com/asinfoshare💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

If a treatment didn’t work, you didn’t fail.In this episode of AS Info Share, we explore why it’s common for people with Axial Spondyloarthritis (AxSpA) / Ankylosing Spondylitis (AS) to feel like they’ve “failed” a medication, and why that mindset needs to change. Whether you’re on your first medication or your fifth, this episode is a reminder that you’re not alone.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV☕ Support Our Workhttps://buymeacoffee.com/asinfoshare💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #biologics #Inflammation #ArthritisRelief #backpain #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7

Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info ShareConfused by all the different names for Ankylosing Spondylitis? You’re not alone.In this episode, we break down the history and terminology behind Axial Spondyloarthritis (axSpA) — and explain the difference between Ankylosing Spondylitis (AS), Radiographic axSpA (r-axSpA), and Non-radiographic axSpA (nr-axSpA).We’ll explain:Why AS used to be the only name usedHow MRI changed the game in early diagnosisWhat axSpA really means — and why it’s the new umbrella termThe difference between r-axSpA and nr-axSpAWhy the terms are still often used interchangeablyHow to recognize the signs early and get diagnosedWhether you’re newly diagnosed or just trying to understand all the names and acronyms, this episode will help you make sense of it all.

Ankylosing Spondylitis Info Share Podcast - An Interview with NASS Board Trustee Gillian EamesIn this episode of AS Info Share, we’re joined by Gillian Eames, a long-time advocate and trailblazer in the Ankylosing Spondylitis community.Gillian has lived with AS for over 40 years and now serves as a Trustee for the National Axial Spondyloarthritis Society (NASS).She shares her powerful story of being part of one of the early biologic drug trials, the impact it had on her health, and how it led her to advocate for broader access to these life-changing treatments. We also discuss her ongoing work in helping others with AS access the support they need, as well as her involvement in awareness efforts such as the “Walk Your AS Off” campaign.This is an honest and insightful conversation with someone who has been on the front lines of change, both personally and publicly.Learn more about NASS at nass.co.ukWatch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook, Twitter, and Instagram 🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share

In this episode, we discuss two powerful treatment options for Ankylosing Spondylitis, biologics and JAK inhibitors. Learn the differences between the treatment options and how they work to help manage Ankylosing Spondylitis.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share