In episode 3 of Live Like It Matters features host Elissa Kalver in conversation with her friend, actress, writer, speaker, and patient advocate Taylor Coffman. Together, they dive into the highs and lows of living with severe illnesses—Elissa with stage IV breast cancer and Taylor with a rare medical condition.
Taylor lives with atypical Hemolytic Uremic Syndrome (aHUS), a rare and complex disease that can cause devastating complications if undiagnosed. Awareness is critical, as aHUS often leads to issues like anemia, low platelets, kidney damage, or even organ failure—but thanks to available treatment, there is also real hope for patients.
With honesty and humor, they discuss finding joy in unexpected places, the power of optimism, celebrating milestones like birthdays, and even tackling “crazy” projects, such as writing books during treatment. They also share the story behind their collaborative podcast, \"Dying to Live,\" which was created to amplify patient voices and raise awareness for rare diseases.
This episode explores resilience, creativity, and the choice to live fully, even in the face of life’s toughest challenges.
Taylor Coffman
Email: taylor.coffman@gmail.com
Website: http://www.taylorcoffman.com/
Instagram and TIKTOK : @taylorcoffmanmade
LinkedIn: https://www.linkedin.com/in/taylor-coffman/
Substack: Rare Disease Girl https://taylorcoffman.substack.com/
Youtube:@RareDiseaseGirl
Elissa Kalver
Email: elissa@wegotthis.org
Website:Elissa Kalver
Instagram: https://www.instagram.com/elissakalver/
Facebook: ElissaKalver
TikTok: https://www.tiktok.com/@elissakalver
Linkedin: https://www.linkedin.com/in/elissakalver
Book: We Got This: How I Learned to Thrive with Terminal Cancer
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