{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/67dc4be9782fc3c7c6d4c175/69e572e423929c3a2afefbc0?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"How the SAA helps patients with Ankylosing Spondylitis / Axial Spondyloarthritis / axSpA with special guest SEAN EWERT","thumbnail_width":200,"thumbnail_height":200,"thumbnail_url":"https://open-images.acast.com/shows/67dc4be9782fc3c7c6d4c175/1776644867810-37003d28-3bb3-4659-ace2-806061bdae8a.jpeg?height=200","description":"<p>How do you manage the daily realities of life with <strong>Ankylosing Spondylitis</strong> and <strong>Axial Spondyloarthritis</strong>?</p><p><br></p><p>In Part 2 of our series with <strong>Sean Ewert</strong> from the <strong>Spondylitis Association of America (SAA)</strong>, we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling with the mental health challenges of chronic illness.</p><p>----------------------------------------------------------------------------</p><p>Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.</p><p>----------------------------------------------------------------------------</p><p><strong>The SAA Website:</strong><a href=\"https://spondylitis.org/\" rel=\"noopener noreferrer\" target=\"_blank\">spondylitis.org</a></p><p><br></p><p><strong>Official WYASO Event Page: </strong><a href=\"https://spondylitis.org/walk-your-as-off/\" rel=\"noopener noreferrer\" target=\"_blank\">spondylitis.org/walk-your-as-off/</a></p><p><br></p><p><strong>Link to join on Zoom for Walk Your AS Off Day May 3rd</strong>: <a href=\"https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration\" rel=\"noopener noreferrer\" target=\"_blank\">https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registration</a></p><p><br></p><p><strong>Create an account to log steps and join a team</strong>: <a href=\"https://spondylitis.org/my-account/?spondylitis-steps=1\" rel=\"noopener noreferrer\" target=\"_blank\">https://spondylitis.org/my-account/?spondylitis-steps=1</a></p><p><br></p><p><strong>Donation:</strong> <a href=\"https://spondylitis.org/get-involved/donate-to-walk-your-as-off/\" rel=\"noopener noreferrer\" target=\"_blank\">https://spondylitis.org/get-involved/donate-to-walk-your-as-off/</a></p><p><br></p><p><strong>Fundraise</strong>: https://spondylitis.raiselysite.com/</p><p><br></p><p><strong>Contact Sean for questions</strong>: sean.ewert@spondylitis.org</p><p><br></p><p><br></p><h3><strong>📸 JOIN THE CELEBRATION</strong></h3><p>This is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using:</p><p><strong>#WalkYourASOff</strong> | <strong>#WYASO</strong></p><p>Link to step converter:</p><p><br></p><p><br></p><h3><strong>💡 PRO TIPS FOR PARTICIPANTS</strong></h3><ul><li><strong>World AS Day:</strong> Remember, World AS Day falls the day before the walk. Wear your <strong>orange</strong>, share your story, and help make our community visible!</li><li><strong>Step Converters:</strong> Not walking? No problem. You can use a step converter (search Google for \"Activity to Step Converter\") to turn yoga, swimming, or even household chores into mileage for your team!</li></ul><p><br></p><p>----------------------------------------------------------------------------</p><p>📲 Follow &amp; Support AS Info Share</p><p><br></p><p>Stay connected for more tips, support, and science-backed info about ankylosing spondylitis:</p><p><br></p><p>☕ Support Our Work</p><p><br></p><p>https://buymeacoffee.com/asinfoshare</p><p><br></p><p><br></p><p>🌐 Website</p><p><br></p><p>https://asinfoshare.com</p><p><br></p><p><br></p><p>📘 Facebook</p><p><br></p><p>https://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr</p><p><br></p><p><br></p><p>📷 Instagram</p><p><br></p><p>https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&amp;utm_source=qr</p><p><br></p><p><br></p><p>X (formerly Twitter)</p><p><br></p><p>https://x.com/asinfoshare?s=21&amp;t=1W8OEkJfbunr_bpIeiSSJw</p><p><br></p><p><br></p><p>▶️ YouTube</p><p><br></p><p>https://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV</p><p><br></p><p><br></p><p>💬 Leave a comment</p><p><br></p><p><br></p><p>📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.</p><p><br></p><p><br></p><p>🔔 Tap the bell to stay updated!</p><p><br></p><p>----------------------------------------------------------------------------</p><p><br></p><p>#AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare</p><p><strong>#WalkYourASOff</strong> | <strong>#WYASO</strong></p><p><br></p><p>----------------------------------------------------------------------------</p><p><br></p><p>https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7</p>","author_name":"EB Media"}