{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/67caee98baaeff02dce9f939/6ad67e8810faf2bcfc875589?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"FTD at Just 22: Andre & Sam's Story ","description":"<p>This week I’m joined by Sam, whose son Andre was diagnosed with FTD at just 22. Sadly, he passed away at 24.</p><p><br></p><p>Andre was a cheeky, lovable rogue with a smile that could get him out of anything. Sam takes us through their journey together, from the first small changes at her wedding to Andre’s rapid decline and his final days in a hospice.</p><p><br></p><p>Sam talks openly about:</p><ul><li>the first signs, and being told Andre’s scan looked like the brain of a 70-year-old</li><li>fighting for support when services didn’t know how to help someone so young</li><li>the decision to donate Andre’s brain to research</li><li>giving Andre the send-off he deserved, and grieving now that the whirlwind has stopped</li><li>setting up Andre’s Moments That Matter CIC, which helps families affected by young-onset dementia make memories together</li><li></li></ul><p>This episode is a stark reminder that dementia isn’t only a disease of older people.</p><p><br></p><p>💛 Find out more about Andre’s Moments That Matter on Facebook and TikTok: https://www.tiktok.com/@andresmomentsthatmatter</p><p><br></p><p>🎉 Forever 24 Fest takes place on 3 July 2027 at Dereham Rugby Club in Norfolk, on what would have been Andre’s 26th birthday.</p><p><br></p><p>💬 Join the conversation: Instagram <strong>@ftdnavigatingthecrap</strong> or email <strong><a href=\"mailto:ftdnavigatingthecrap@gmail.com\" rel=\"noopener noreferrer\" target=\"_blank\">ftdnavigatingthecrap@gmail.com</a></strong></p><p><br></p><p><em>This episode includes discussion of the death of a young person and grief.</em> If you need support, Alzheimer’s Research UK and Alzheimer’s Society are there to help.</p>","author_name":"Beth Jones"}