{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/66f1aa7253d1bcf49e8c7818/67e0c9d5639ec2394a56d3d2?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"Building a data warehouse to help find a cure for ALS","description":"<p>ALS is a fatal motor neuron disease that has no cure and is estimated to affect hundreds of thousands of people worldwide. Why is a cure, or even a meaningful treatment, so elusive? We talk with data engineer, scientist, and rare disease advocate Danielle Boyce at ALS TDI about her work helping us all better understand this terrible illness. While the topic is grim, Danielle provides a lot of hope -- as well as inspiration to all of us to get involved in solving problems through data.</p><p><br></p><p>Follow Danielle and her amazing data &amp; statistics tips on LinkedIn: <a href=\"https://www.linkedin.com/in/data-danielle/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.linkedin.com/in/data-danielle/</a>.</p><p>Find out more about ALS Therapy Development Institute (ALS TDI): <a href=\"https://www.als.net/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.als.net/</a> (and donate if you like!).</p><p>Two other resources Danielle mentioned to get involved: <a href=\"https://ohdsi.org/\" rel=\"noopener noreferrer\" target=\"_blank\">https://ohdsi.org/</a> and <a href=\"https://www.geoals.org/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.geoals.org/</a>.</p><p><br></p><p>Follow Brooke Eby on the various social medias: <a href=\"https://www.instagram.com/limpbroozkit/\" rel=\"noopener noreferrer\" target=\"_blank\">@limpbroozkit</a>.</p><p>Check out my father Robert Rooy's film about our friend John Godinet: <a href=\"https://www.lovingjohnmovie.com/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.lovingjohnmovie.com/</a> and watch the trailer <a href=\"https://vimeo.com/1053852136/becdb0029f\" rel=\"noopener noreferrer\" target=\"_blank\">here</a>!</p><p><br></p><p>Follow me at <a href=\"https://www.instagram.com/jonesrooy\" rel=\"noopener noreferrer\" target=\"_blank\">@jonesrooy</a> and <a href=\"https://www.jonesrooy.com/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.jonesrooy.com/</a>. Behind the Data is proud to be part of the <a href=\"https://dailytechnewsshow.com\" rel=\"noopener noreferrer\" target=\"_blank\">Daily Tech News Show</a> ecosystem. Special thanks to Tom Merritt and our producer Roger Chang!</p>","author_name":"Andrea Jones-Rooy"}