{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/66d218adc7651a10d3468afb/6a301fd9cd02369494ff44d2?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"Digital Stories in Community-Based Research with Carolyn Brandly","thumbnail_width":200,"thumbnail_height":200,"thumbnail_url":"https://open-images.acast.com/shows/66d218adc7651a10d3468afb/1782504491958-8e6993c6-6882-4cb9-8546-d9c1e49ccdc3.jpeg?height=200","description":"<p>A single well-told story can do what a stack of reports cannot: make someone feel the reality of living in a body, a system, or a diagnosis they’ve never had. We sit down with Carolyn, a newly trained Common Language Digital Storytelling facilitator and PhD student, to unpack how digital storytelling becomes a practical tool for health research, quality improvement, and stigma-breaking conversations. </p><p><strong>Episode Key Messages</strong></p><ul><li>recreation therapy roots and building community programs for older adults</li><li>research and quality improvement as tools for systems change in long-term care</li><li>discovering Common Language through MAID digital stories and stigma reduction</li><li>choosing a more personal story and learning facilitation through vulnerability</li><li>living with disability, wait times in Canada, and rebuilding identity after surgery</li><li>Kilimanjaro as a turning point for confidence, aging, and capacity</li><li>adapting digital storytelling for people living with dementia in a PhD protocol</li><li>co-research, simplified materials, slower pacing, and practical accessibility tweaks</li><li>making a first volunteer story with her mom and deepening connection through memory</li><li>recording voiceover many times and small changes that amplify a storyteller’s voice</li><li>informed consent, sharing implications, and the ethics of public storytelling</li><li>challenging ethics board assumptions and shifting to assumed capacity</li><li>rights-based approaches to dementia in public spaces and collaboration invitations</li></ul><p><strong>Other Links Mentioned</strong></p><ul><li>Read this <a href=\"https://commonlanguagedst.org/blog/digital-stories-in-community-based-research\" rel=\"noopener noreferrer\" target=\"_blank\">episode's blog post</a></li><li>Watch <a href=\"https://drive.google.com/file/d/12e62DVCnxztl7cO3JE-_NFLTQR7n5jrB/view?usp=drive_link\" rel=\"noopener noreferrer\" target=\"_blank\">Carolyn's Story</a></li><li>Watch <a href=\"https://drive.google.com/file/d/1GFaYCun-1p5M6FVfv5EmLKkL-povJr7A/view?usp=drive_link\" rel=\"noopener noreferrer\" target=\"_blank\">Marg's Story</a></li><li>Learn more about Carolyn's work with <a href=\"https://dementiaconnections.org/\" rel=\"noopener noreferrer\" target=\"_blank\">Dementia Connections</a> and <a href=\"https://www.healthresearchbc.ca/award-recipient/carolyn-brandly/\" rel=\"noopener noreferrer\" target=\"_blank\">PhD research</a></li></ul><p><strong>Other Episodes Mentioned</strong></p><ul><li><a href=\"https://shows.acast.com/co-created/episodes/disrupting-death-stories-of-maid\" rel=\"noopener noreferrer\" target=\"_blank\">Episode 37</a> Disrupting Death: Stories of MAiD with Kathy Cortes-Miller and Keri-Lyn Durant</li><li><a href=\"https://shows.acast.com/co-created/episodes/the-storytellers-yellow-pages\" rel=\"noopener noreferrer\" target=\"_blank\">Episode 52</a> The Storyteller’s Yellow Pages with Lisa Joworski</li><li><a href=\"https://shows.acast.com/co-created/episodes/treat-strories-like-data \" rel=\"noopener noreferrer\" target=\"_blank\">Episode 57</a> What Changes When We Treat Stories Like Data with Dr. Katharine Smart</li></ul><p><strong>About Our Guest</strong></p><p>Carolyn Brandly has worked with and for older adults and people with dementia for 20+ years in care and community settings – designing, implementing, and evaluating health promotion programs, and facilitating community development, knowledge translation and quality improvement initiatives and research. Carolyn has achieved an MA in health leadership, as well as completing graduate-level education in dementia studies, gerontology, and entrepreneurship, and is currently undertaking doctoral studies through the University of Victoria’s Social Dimensions of Health Program. Her aim is to contribute to global efforts shaping inclusive health and social systems that uphold the human rights, autonomy and dignity of people living with dementia.</p>","author_name":"Snack Labs"}