For parents, caregivers, and anyone living close to cystic fibrosis, this episode asks a painful, hopeful question: what does a CF diagnosis mean for a child born today?
Jeremie Saunders follows two families separated by a generation of science. One entered the world of CF before modulators, when a diagnosis landed like grief and the future felt brutally narrow. The other is raising a child diagnosed through newborn screening in the age of Trikafta, where the prognosis conversation has changed—but fear hasn’t disappeared.
Along the way, we trace the sweat test, newborn screening, pediatric CF care, and the strange emotional terrain of parenting in an era of real medical progress. You’ll hear how Trikafta is reshaping childhood, what still keeps parents up at night, and why hope in cystic fibrosis is wider now—but not yet complete.
This is an episode about the next generation of CF: born into more possibility, still living with uncertainty.