{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/660d7e37088d5100152d246e/6ad2e7297ce338e8cd07557b?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"Navigating Cholangiocarcinoma, Clinical Trials and Self-Advocacy with Melinda Bachini","thumbnail_width":200,"thumbnail_height":200,"thumbnail_url":"https://open-images.acast.com/shows/660d7e37088d5100152d246e/1792206581702-9d83cf02-968e-4537-bcd2-12176b99d9e5.jpeg?height=200","description":"<p>What happens when you are handed a rare, low-survival cancer diagnosis and told there are no options left? How do you transition from the overwhelming shock of a devastating prognosis to actively taking control of your medical journey? What if the key to unlocking years of quality life lies in exploring clinical trials long before they are offered as a last resort?</p><p><br></p><p>In this powerful episode of the <em>Ask the Patient Advocate Podcast</em>, host Dr. Elena Borrelli sits down with Melinda Bachini, a 16-year survivor of cholangiocarcinoma—a rare and aggressive bile duct cancer. After her initial diagnosis offered little hope, Melinda took charge of her care, leading her to a pioneering clinical trial at the National Cancer Institute. Today, she serves as the Chief Patient Officer at the Cholangiocarcinoma Foundation, sitting on national research committees to ensure patient advocacy remains at the forefront of medical research and policy.</p><p><br></p><p>Tune in to discover how using your voice can unlock hope, extend quality of life, and transform the future of cancer care.</p><p><br></p><h3><strong>Take the Next Step in Your Healthcare Journey</strong></h3><p><br></p><p>Mastering self-advocacy can save lives. If you are ready to gain the tools, confidence, and knowledge to navigate complex medical diagnoses for yourself or your loved ones, explore our comprehensive<a href=\"https://pathwaypa.com/pathwaycourses/\" rel=\"noopener noreferrer\" target=\"_blank\"> </a><u><a href=\"https://pathwaypa.com/pathwaycourses/\" rel=\"noopener noreferrer\" target=\"_blank\">Self-Advocacy Course</a></u>.</p><p><br></p><p>Need personalized support? If you are looking for a dedicated private patient advocate to walk alongside you, call us today at <strong>947-517-8395</strong> to learn how we can help.</p><p>If you have questions or topics you&#39;d like us to explore, don&#39;t hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.</p><p><br></p><p>Connect with Melinda:</p><p>https://www.facebook.com/melinda.bachini</p><p>https://www.linkedin.com/in/melinda-bachini-b04b8b100/</p><p>https://www.instagram.com/mebachini/?hl=en</p><p>https://x.com/melinda_bachini</p><p>https://www.cholangiocarcinoma.org/</p><p>TikTok @melindabachini</p><p><br></p><p>Connect with Dr. Elena Borrelli:</p><p>Instagram: <u><a href=\"https://www.instagram.com/pathwaypadvocates/\" rel=\"noopener noreferrer\" target=\"_blank\">@pathwaypadvocates</a></u></p><p>Facebook:<u><a href=\"https://www.facebook.com/PathwayPatientAdvocates\" rel=\"noopener noreferrer\" target=\"_blank\"> Pathway Patient Advocates</a></u></p><p>Youtube: <u><a href=\"https://www.youtube.com/@pathwaypatientadvocates9311\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></u></p><p>Tiktok: <u><a href=\"https://www.tiktok.com/@pathwaypatientadvocates\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></u></p><p>LinkedIn: <u><a href=\"https://www.linkedin.com/company/pathway-patient-advocates/\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></u></p><p><u><a href=\"http://pathwaypa.com\" rel=\"noopener noreferrer\" target=\"_blank\">pathwaypa.com</a></u></p>","author_name":"Elena Borrelli"}