{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/660d7e37088d5100152d246e/699f0b2ef5ae85b4a27d21c4?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"Navigating EDS, Endometriosis, and Self-Advocacy with Gigi Robinson","thumbnail_width":200,"thumbnail_height":200,"thumbnail_url":"https://open-images.acast.com/shows/660d7e37088d5100152d246e/1772029289324-3480179c-7343-41fa-850b-06376da54f65.jpeg?height=200","description":"<p><strong>Have you ever been told your symptoms were “normal”… when they didn’t feel normal at all?</strong></p><p><strong>Have you ever left a doctor’s appointment feeling dismissed, unheard, or defeated?</strong></p><p><strong>What if your pain wasn’t in your head — but simply misunderstood?</strong></p><p><br></p><p>March is Endometriosis Awareness Month. This episode is dedicated to all women battling endometriosis. </p><p><br></p><p>In this powerful episode of <strong>Ask the Patient Advocate Podcast</strong>, Dr. Elena Borrelli sits down with <strong>Gigi Robinson</strong> — endometriosis warrior, Ehlers-Danlos syndrome (EDS) advocate, author, speaker, and digital creator — to talk about chronic illness, self-advocacy, and turning lived experience into impact.</p><p><br></p><p>Gigi’s journey began in adolescence after repeated injuries led to a diagnosis of hypermobile EDS. But that was only the beginning. After more than a decade of searching for answers, countless tests, and years of debilitating symptoms, she was finally diagnosed with endometriosis in 2022 — a diagnosis that changed her life.</p><p><br></p><p>In this conversation, Gigi shares:</p><p>• What it’s like to grow up with an invisible illness</p><p>• The frustration of normal test results when you know something is wrong</p><p>• How a simple blood test revealed a missed diagnosis that years of procedures did not</p><p>• Why symptom tracking and specificity are critical in the diagnostic process</p><p>• The mindset shift that helped her move from surviving to advocating</p><p>• The challenges of navigating chronic illness in the workplace — and how to request meaningful accommodations</p><p>• Why she wrote <em>A Kids Book About Chronic Illness</em> and why resilience starts early</p><p><br></p><p>If you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.</p><p><br></p><p>For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395</p><p><br></p><p>Connect with Gigi Robinson:</p><p><a href=\"https://www.gigirobinson.com/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.gigirobinson.com/</a></p><p><a href=\"https://www.facebook.com/itsgigirobinson\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.facebook.com/itsgigirobinson</a></p><p><a href=\"https://www.instagram.com/itsgigirobinson/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.instagram.com/itsgigirobinson/</a></p><p><a href=\"https://www.tiktok.com/@itsgigirobinson\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.tiktok.com/@itsgigirobinson</a></p><p><a href=\"https://www.linkedin.com/in/gigirobinson\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.linkedin.com/in/gigirobinson</a></p><p><a href=\"https://www.threads.com/@itsgigirobinson\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.threads.com/@itsgigirobinson</a></p><p><a href=\"https://www.youtube.com/c/GigiRobinson/featured\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.youtube.com/c/GigiRobinson/featured</a></p><p><br></p><p>Connect with Dr. Elena Borrelli:</p><p>Instagram: <a href=\"https://www.instagram.com/pathwaypadvocates/\" rel=\"noopener noreferrer\" target=\"_blank\">@pathwaypadvocates</a></p><p>Facebook:<a href=\"https://www.facebook.com/PathwayPatientAdvocates\" rel=\"noopener noreferrer\" target=\"_blank\"> Pathway Patient Advocates</a></p><p>Youtube: <a href=\"https://www.youtube.com/@pathwaypatientadvocates9311\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p>Tiktok: <a href=\"https://www.tiktok.com/@pathwaypatientadvocates\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p>LinkedIn: <a href=\"https://www.linkedin.com/company/pathway-patient-advocates/\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p><a href=\"http://pathwaypa.com\" rel=\"noopener noreferrer\" target=\"_blank\">pathwaypa.com</a></p>","author_name":"Elena Borrelli"}