{"version":"1.0","type":"rich","provider_name":"Acast","provider_url":"https://acast.com","height":250,"width":700,"html":"<iframe src=\"https://embed.acast.com/$/660d7e37088d5100152d246e/6995e73cf8a4f13cff944e0c?\" frameBorder=\"0\" width=\"700\" height=\"250\"></iframe>","title":"Invisible No More: Women, Pain, and the Fight to Be Believed with Laurie Edwards","thumbnail_width":200,"thumbnail_height":200,"thumbnail_url":"https://open-images.acast.com/shows/660d7e37088d5100152d246e/1771431722344-ef69f293-7ac1-4a5b-b5aa-c45d85c96c65.jpeg?height=200","description":"<p><strong>Have you ever felt invisible in your illness?</strong></p><p><strong>Ever been told your symptoms were anxiety… exaggeration… or “just stress”?</strong></p><p><strong>Have you wondered why some stories of illness are believed, while others are dismissed?</strong></p><p><br></p><p>In this powerful episode of <strong>Ask the Patient Advocate Podcast</strong>, Dr. Elena Borrelli sits down with award-winning author, professor, and patient advocate <strong>Laurie Edwards</strong> — a leading voice in chronic illness storytelling and public health.</p><p><br></p><p>Long before chronic illness was widely discussed on social media, Laurie was writing about it. Through her groundbreaking books <em>Life Disrupted</em> and <em>In the Kingdom of the Sick</em>, and her essays in outlets like <em>The New York Times</em>, NPR, and <em>The Boston Globe</em>, she has helped shape the national conversation around what it really means to live with chronic disease.</p><p><br></p><p>But Laurie doesn’t just write about chronic illness. She lives it.</p><p><br></p><p>In this conversation, we explore:</p><ul><li>Why storytelling is one of the most powerful tools in patient advocacy</li><li>How chronic illness activism has shaped medical breakthroughs and civil rights</li><li>The impact of Long COVID on public awareness of chronic conditions</li><li>Why women’s pain is still more likely to be dismissed — and the dangerous consequences of that bias</li><li>The unique challenges young adults with chronic illness face in education, relationships, and careers</li><li>How “writing to heal” can help patients process trauma, reclaim their narrative, and advocate more effectively</li></ul><p><br></p><p>If you have questions or topics you'd like us to explore, don't hesitate to reach out to us at advocate@pathwaypa.com. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.</p><p><br></p><p>For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395</p><p><br></p><p>Connect with Laure Edwards:</p><p><a href=\"https://www.laurieedwardswriter.com/\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.laurieedwardswriter.com/</a></p><p><a href=\"https://www.facebook.com/laurieedwardswriter\" rel=\"noopener noreferrer\" target=\"_blank\">https://www.facebook.com/laurieedwardswriter</a></p><p><a href=\"www.linkedin.com/pub/laurie-edwards/1/9a5/849\" rel=\"noopener noreferrer\" target=\"_blank\">www.linkedin.com/pub/laurie-edwards/1/9a5/849</a></p><p><br></p><p>Connect with Dr. Elena Borrelli:</p><p>Instagram: <a href=\"https://www.instagram.com/pathwaypadvocates/\" rel=\"noopener noreferrer\" target=\"_blank\">@pathwaypadvocates</a></p><p>Facebook:<a href=\"https://www.facebook.com/PathwayPatientAdvocates\" rel=\"noopener noreferrer\" target=\"_blank\"> Pathway Patient Advocates</a></p><p>Youtube: <a href=\"https://www.youtube.com/@pathwaypatientadvocates9311\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p>Tiktok: <a href=\"https://www.tiktok.com/@pathwaypatientadvocates\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p>LinkedIn: <a href=\"https://www.linkedin.com/company/pathway-patient-advocates/\" rel=\"noopener noreferrer\" target=\"_blank\">Pathway Patient Advocates</a></p><p><a href=\"http://pathwaypa.com\" rel=\"noopener noreferrer\" target=\"_blank\">pathwaypa.com</a></p>","author_name":"Elena Borrelli"}