This morning Tommy Marren spoke to Barry Moloney on air. Barry Moloney is 30 years old and was born with a rate genetic condition called Hippel-Lindau – a disease that causes tumours to grow throughout his body.
In 2015 Barry’s mother Marie died from the disease after years of surgeries. Barry’s doctors believe that he is a suitable candidate for a drug called Belzutifan which has been approved by the European Medicines Agency for use in the EU but the drug is not available to patients in Ireland.
Without this drug Barry is likely to face a future of repeated surgeries as tumours continue to develop.
Listen to Barry's story here.
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