Understanding people’s experiences of health care for patients with chronic conditions is critical to evaluate and improve services, and to ensure that health care is organised in a way that addresses what really matters to people. But patient outcome and experience data has never been collected in such a large scale international systemic way to make patient voices heard in health policy making. However, the OECD is seeking to change this with its first of a kind survey, the OECD Patient Reported Indicator Survey (PaRIS) - a brand-new international survey of outcomes and experiences of patients living with chronic conditions who are managed in primary care. The survey is built to measure what matters - the patient voice - to make health systems more people-centered and to collect data that matters to patients themselves.
Joining us in this episode are Candan Kendir and Michael van den Berg, health policy analysts at the OECD who are representing the PaRIS team. Guiding the conversation is Rebecca Barlow-Noone, Communications Officer at EPHA, who represents EPHA on the PaRIS Patient Advisory Panel, and is a patient advocate herself.
See Rebecca and other advocates in the OECD PaRIS video: https://youtu.be/HiSqVxhBSQs?si=AgxnnrxfsHX1xgXM
Giving Health a Voice is the podcast of the European Public Health Alliance, bringing public health to the fore and discussing the most pressing issues with experts in the field. It will speak to both those with a stake in health and those whose health is at stake.
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