Happy Tuesday my favourite people! I hope you are having a lovely week. Today’s episode we are heading to Auckland and I am chatting to Holly Mercer about her diagnosis of rare disease Beçhet’s Disease and Neuro Beçhet’s.
In this episode Holly talks us through the 15 or so years of constantly wondering what was happening to her, how she imagined receiving a diagnosis would look like… and then the reality of actually getting that diagnosis, what Beçhet’s is, the treatment plan moving forward, and how chronic illness has inspired her art.
I felt like I had known Holly forever and I loved getting to learn more about her story. I think you’re really going to enjoy this episode too.
You can find Holly on instagram: @hollydoesntfeelwell
And to stay up to date with Touch Compass and when Holly’s art installation Thread Count as part of /rītaha/ will be, you can check out their website: touchcompass.org.nz or follow them on social media @touchcompass
For more information about Rare Disorders NZ: raredisorders.org.nz
That “show must go on” post that we mention can be found on @offstage.equilibrium ‘s instagram: instagram.com/p/CT40X0rLkPG/
And if you want to reach out, tell me something fun that’s happening for you, or just connect, feel free to send me a DM or follow along with the adventures over on Instagram, I’m @thatssochronic
@thatssochronic | @jessssbrien | #thatssochronic
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Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others.
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