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Season 1 E05 – Tools to reinforce advocacy initiatives I: Patient Reported Outcomes, Burdens, and Experiences (PROBE)

Season 1, Ep. 5

Mark Skinner, President/CEO of the Institute for Policy Advancement, USA, and David Page, National Director of Health Policy at the Canadian Hemophilia Society, Canada, talk about the importance of data collection and patient-reported outcomes for enhancing the patient voice in healthcare decision-making. They discuss one data collection project in particular, called PROBE, and highlight how it can be used as an evidence-based tool by advocacy groups.


All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8325

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