CF Patient Advocacy - eCystic Fibrosis Review bonus episode
Please note, this podcast is not accredited and does not provide continuing education credit.
eCystic Fibrosis Review Program Director Donna Peeler, RN, is a Clinical Nurse at the Johns Hopkins Cystic Fibrosis Center in Baltimore. Recently she interviewed Ella Balasa, an adult with cystic fibrosis in Richmond Virginia, who has been working in CF Patient Advocacy.
Their discussion exchange focused on what clinicians and their patients with CF, as well as the parents of pediatric patients with CF, can do to help develop the kind of effective shared-decision making that leads to improved outcomes. Their discussion, which you can hear right here in just a moment, is also available in video format at the CF Education Center Resource Center’s Curriculum Builder, a program supported by Vertex Pharmaceuticals.